Health

Primary Health Care Team

The Primary Health Care Team consists of General Practitioners, Health Visitors, Community Nurses and Community Midwives. The GP is responsible for the health care of all his patients and will refer a patient for whatever specialist help may be required.

Health Visitors

Health Visitors are qualified nurses with additional postgraduate training, equipping them with the knowledge and expertise to work with families and groups in the Community. They are based either in GP Surgeries, Health Clinics or Health Centres. Health Visitors offer support and guidance in child rearing and parenting, particularly for infants and children under 5 years. They also support parents with children with disabilities, providing advice on care and facilitating any aids, benefits and support services that may be required.

Health Visitors do not work in isolation but work closely with GPs and other members of the Primary Health Care Team as well as working closely and in collaboration with other agencies, thus being able to offer and access a wide range of services.

Health Visitors also work closely with School Nurses in supporting the care of children with special needs in the school setting.

All children are invited to attend Child Health promotion and developmental assessment clinics provided by their GP, HV or Community Medical Officer. If there is any cause for anxiety, a referral is made by a GP for further investigation by a Consultant Paediatrician.

Mother’s are invited to bring their children for protection against diphtheria, tetanus, pertussis (whooping cough), polio and haemophilus influenza B (HIB) at 3 months for a course of 3 monthly injections. Vaccination to protect children against measles, mumps and rubella (German Measles) is offered at 12-15 months.

Your Health Visitor will have information about local services.

Community Midwife

Specialises in preparation for pregnancy, assistance during pregnancy to maintain good health and to prepare for childbirth. The Midwife provides follow up care for the mother and baby both to the Maternity Unit and at home for the first 10 days before handing over care to the Health Visitor.

HOSPITAL AND COMMUNITY SERVICES

Most districts have a Child Development Centre that may be based in a hospital or in the Community. A child may be referred to a centre for an assessment by a team of specialists which will include a Consultant Paediatrician, a paediatric Speech and Language Therapist, a paediatric Physiotherapist, an Occupational Therapist and a Clinical Psychologist. A Social Worker or a representative for the local Education Authority may also be available. The child’s general health, hearing, eyesight, communication skills, mobility and social and emotional development will be assessed. All parental concerns are addressed and joint decisions are made between the parents, medical and therapy staff about any future medical treatments and therapies. There may be a need to refer a child to other specialists or for further investigations.

The child clinical psychologist is a specialist in children's emotional, intellectual and behavioural development. They provide assessment and counselling and also devise programmes for parents to follow to help children develop skills. Advice can also be given on managing any sleeping disturbances, tantrums, or unco-operative behaviour.

Occupational therapists work with children with a variety of conditions including cerebral palsy, developmental delay and developmental co-ordination

disorders. The O.T. can assist your child to develop personal skills by devising individual programmes, and to develop their fine motor skills. They can also advise you about mobility and seating. Therapy is provided at centres, in mainstream and special schools or in a child's home.

A Paediatric Physiotherapist will advise parents on positioning, handling and the use of exercises to help prevent the development of muscle contractures when muscle tone is impaired, and to assist a child whose motor development is delayed. The family and therapist work together incorporating treatment into daily life.

Assesses a child’s development of communication skills and continues to offer therapy and advice as long as it is required. Therapy may take place in the home, in a child development nursery or in a school environment. Programmes of therapy are carried out by all involved in the care of a child e.g. parents and family members, playgroup helpers and teachers.

Some babies require very special nursing and medical care following delivery because they are premature or have problems requiring very close observation or specialist nursing and therapies. Your GP and HV will be kept informed. If your baby is receiving care in a Special Care Baby Unit it is likely that he or she will be followed up after discharge in a paediatric clinic.

If admission to hospital is necessary at any time your child will be cared for on the children's ward by Paediatric Nurses and Paediatricians. The ward staff will encourage you to spend as much time as possible with your child during the stay. Facilities for parents are available in most hospitals. If your child has nursing needs after discharge a specially trained Paediatric Nurse may visit you at home to carry out any nursing needs.

Hospital based Paediatricians provide outpatient clinics for treatment and follow up of children’s medical problems and following hospital admissions.

The Social Worker is pleased to meet parents who have children with disabilities while in hospital and will liaise with the Specialist Disability Team for your home district following discharge. Together you can discuss immediate and long-term worries and concerns and assess your needs in order to identify the help, support and services necessary to assist you in caring for your child. The Social Worker can put you in touch with other parents through the Face to Face befriending service, (see Section 3 factsheet 4) parent support groups and counselling services. Advice on welfare rights is also available.

Parents who have a child with a disability are concerned about the risk of future children having the same conditions. The Regional Genetic Service provides diagnosis and counselling for families with inherited conditions. Your GP or Consultant Paediatrician can make a referral.

Dietetic advice is indicated in the management of many conditions. The dietician sees children who require modified diets as part of their treatment so that a diet can be devised to meet a child’s specific needs. Your GP or consultant can refer to your local service.

Offers a full range of dental care to children, who due to a special need are unable to be treated by their family dentist.

Patients can be referred to the service by their dentist, GP, health visitor or other health professional. An initial assessment can take place in a dental clinic or at Frimley Park Hospital.

Within the next few years it is proposed that all babies will have a neonatal hearing-screening test. Babies who have a family history of deafness or who have had treatment or medical problems in the new-born period associated with hearing loss already have this test. At present all babies are tested at 7-9 months by Health Visitor’s and this will gradually be phased out. If there is concern about the result of a hearing test, the baby is referred to an Audiology Clinic. Advice and support will be given to parents of children found to be hearing impaired. Regular follow up assessments of hearing and speech and language development are arranged. If necessary children’s hearing aids are prescribed and can be fitted. Progress will be monitored and support given in the home by a Teacher from the Sensory Support Services (Hearing).

Following a referral from a GP, health professional or parent/guardian, all children are fully assessed as to their foot health needs by a State Registered Chiropodist/Podiatrist. Please enquire at your local Health Centre for details of your nearest N.H.S. Chiropody Clinic.

To provide an advisory and educational service on all aspects of managing incontinence in the home. This service is for both children and adults. Your Health Visitor can put you in touch with this service.

Welcomes children with disability and offer's treatment and preventative advice on diet, tooth brushing and fluoride supplement. The service is normally based at your local Child Health Clinic or you may wish to use your family dentist. Dental services may sometimes be available through your child's school. Further advice on this service can be obtained from your Health Visitor or School Nurse

This service is provided by trained nurses who have specialised in Learning Disability and provides home visiting to parents and carers of people with learning disabilities. They can offer help that can be personal or practical, counselling and advice on behaviour.

Staff work with children with a variety of conditions including cerebral palsy, developmental delay and developmental co-ordination disorders. The O.T. can assist your child to develop personal skills by devising individual programmes, and to develop their fine motor skills. They can also advise you about mobility and seating. Therapy is provided at centres, in mainstream and special schools or in a child's home.

Eyes and Vision

If there is any parental concern, or family history of eyesight problems, or a learning difficulty, an assessment of a child’s vision can be made by referral to a Consultant Ophthalmologist and/or Orthoptist. If a child has visual difficulties, a Teacher from the Sensory Support Services (Vision) will visit you at home and/or your child’s school to instruct and advise on techniques which assist and enhance your child’s learning skills.

A Consultant Child Psychiatrist is a doctor who has specialised in the branch of medicine concerned with the study and treatment of the mental ill health, emotional and behavioural disorders of childhood and adolescence. Child psychiatrists work within multi-disciplinary teams, (see Child and Family consultation Service, factsheet 4).

The service provides physiotherapy assessment and treatment for children. The Community Physiotherapist will compile an individual exercise programme for your child to stimulate movement, increase co-ordination and strengthen muscle power to prevent deformity and to provide equipment to enhance mobility. Children are seen at home, in special schools, mainstream schools and nursery schools. An assessment includes help and advice to parents and carers.

The Community Child Health Department provides a service to all state schools and for children with special educational needs. The Community Paediatricians will see pre-school and school children for medical assessment in order to provide advice for the Assessment of

Special Educational needs. They will also be involved in regular reviews of educational special needs and be able to offer advice to parents, schools and other professionals at other times. Each school has a named School Nurse who is available to ensure a child’s health needs are met at school.

The service aims to provide an assessment of communication needs, appropriate advice and intervention as part of a multidisciplinary team. There is an early home visiting service for children with learning disabilities to assist with disorders of speech, language, fluency, sound production and feeding.

Referrals to this service can be made by your physiotherapist, OT or GP for the provision of certain pushchairs, buggies and wheelchairs.

Go To Top Of Page

The Service offers a diagnostic assessment and treatment service to children and their families. The majority of children referred to the service have emotional and behavioural problems.

The team consists of:-

Consultants in Child and Adolescent Psychiatry, Child Psychologists, Psychiatric Social Workers, who are specialists in Family Therapy and Community Psychiatric Nurses and a Principal Clinical Child Psychologist. For the address of your local service (see Section 2 factsheets 5).

Work with both children and adults who are deaf or hard of hearing. This involves a range of advice, practical support and equipment service. In particular work with families of deaf children can include:

For further information contact:-

Deaf Services Team

Rentwood Resource Centre

School Lane, Fetcham

Surrey KT22 9JX

Telephone: 01372 376558

Minicom: 01372 362471

(see also Section 2 factsheet 7)

Provides information and advice to parents of visually impaired children. Surrey Association for Visual Impairment maintains the Register of Visually Impaired Children on behalf of Surrey County Council. They are happy to assist you to claim benefits (such as DLA).

They can also provide children with mobility training - (teaching your child to move comfortably in their environment by using senses other than vision).

For further information contact:-

S.A.V.I.

Rentwood Resource Centre

School Lane, Fetcham,

Surrey KT22 9JX

Telephone: 01372 377701

Minicom: 01372 361517

E-Mail: info@sa-vi.org.uk

Go To Top Of Page

HOSPITAL SERVICES

Children with disabilities who live in Guildford and Waverley may be referred to:

Children's Unit

The Royal Surrey County Hospital

Egerton Road

Guildford GU2 5XX

Telephone: 01483 464135

Services provided by The Royal Surrey County Hospital.

Some babies are cared for in the Special Care Baby Unit because they are premature or have particular problems requiring extra skilled nursing. A Sister affiliated with the unit may visit you at home after your baby is discharged, to offer you support and advice. She will liaise with your Health Visitor. If your baby is receiving care in the Special Care Baby Unit he or she may be followed up after discharge at a Paediatric Clinic.

B I S C S - Babies in Special care Support

BISCS - is a group of parents who share the experience of having a baby in special care and can offer new parents support.

Contact Point:

Special Care Baby Unit

Telephone: 01483 571122 ext. 4701

Children's In-Patient Care

If your child needs to be admitted to hospital at any time and is aged under 14 years Paediatric Nurses and Paediatricians will care for him or her on the children’s ward. Older children are also cared for whenever possible on the children’s ward.

Contact Point: Compton Ward

Telephone: 01483 571122 ext. 4072

Both the Paediatric Outpatient Clinics and the Child Development Centre provide continuing care for children with disabilities as outpatients.

Child Development Centre

The Child Development Centre brings together a team of specialists who advise parents and assess and treat children whose development is giving cause for concern. A booklet about the centre will be sent to parents with their child's first appointment or may be obtained from the Children's Unit. Children together with their parents may need to see some, or all, of the people who work on the unit.

The Child Development Team who provide services at the Centre include:

Consultant Paediatricians

Clinical Child Psychologists

Occupational Therapist

Physiotherapists

Speech and Language Therapist

Social Services Social Worker

Liaison Health Visitor/Counsellor

Other Services provided at the Centre:

Opportunity Playgroup

This playgroup for children with special needs is held in the Children's Unit on two mornings each week during school terms. Experienced volunteers staff it.

For more information contact:

Playgroup Organiser via Outpatients reception

Telephone: 01483 464074

Tuesday and Friday 9.30am-12.00 noon

Toy Library

The Toy Library lends toys to any child who attends the Child Development Centre. It is staffed by volunteer helpers. The Library has a stock of over 700 toys, jigsaws and games.

For further information contact:

Toy Library Organiser via Outpatients reception

Telephone: 01483 464074

Monday and Friday 9.30am - 12.00 noon

Groups for Parents of Children with Autism

The Team provide a series of sessions for parents of children recently diagnosed as having autistic spectrum disorders, in order to provide information about autism, services available and to provide support.

For further information contact:

Liaison Health Visitor at the Centre

Marie Scotland

Telephone: 01483 571122

Ask for bleep

Children with disabilities who live in Farnham and Surrey Heath may be referred to:

Frimley Children's Centre

Church Road

Frimley

Surrey GU16 5AD

Telephone: 01483 782800

Rainbow Assessment and Treatment Group

This child development unit functions as a multidisciplinary team who accepts referrals from professionals for children whose pre-school development is causing concern.

The unit houses specifically directed therapy groups run by senior paediatric therapists and supported by nursery nurses.

A fast track multidisciplinary assessment may be offered to specific children aged three and over, to establish their needs and formulate a treatment plan-incorporating liaison with external agencies.

Services Provided at the Centre by the Child Development Team

Paediatric Consultancy

Psychology

Speech and Language Therapy

Physiotherapy

Occupational Therapy

Children’s Services Social Worker

SNAPS

This child and parent group runs from the centre. It offers support and therapy opportunities in a play centred environment.

For more details:

Telephone: 01483 782937

Services provided at Frimley Park Hospital.

Special Care Baby Unit

Some babies are cared for in the Special Care Baby Unit because they are premature or have particular problems requiring extra skilled nursing. A Sister on the unit will liaise with your Health Visitor. If your baby is receiving care in the Special Care Baby Unit it is likely that he or she will be followed up after discharge at a Paediatric Clinic.

Children's In-Patient Care

If your child needs to be admitted to hospital at any time Paediatric Nurses and Paediatricians will care for him or her on the children’s ward.

Contact Point:

Frimley Park Hospital

Portsmouth Road

Frimley

GU16 5UJ

Telephone: 01276 604604

Merry-Go-Round Toy and Leisure Library

For children and young adults with special needs.

Monday –Thursday 10am–12 noon

Telephone: 01483 782936

SPECIALIST HOSPITAL SERVICES

Children with disabilities who live in Runnymede, Spelthorne and Woking are seen on an outpatient basis in their nearest hospital:

St Peter's Hospital NHS Trust

Guildford Road

Chertsey

Surrey KT16 0QA

Telephone: 01932 872000

Ashford Hospital

London Road

Ashford

Middlesex TW15 3AA

Telephone: 01784 884488

Children's In-Patient Care

(All hospital admissions are made to Ashford/St Peter’s Hospital NHS Trust at St Peter’s Hospital)

If your child needs to be admitted to hospital at any time nurses and Paediatricians will care for him or her on one of the children’s wards.

Contact Point:

Oak or Ash Ward

Telephone: 01932 872000

Special Care Baby Unit

Some babies are cared for in the Special Care Baby Unit because they are premature or have particular problems requiring extra skilled nursing. A Sister on the unit will liaise with your Health Visitor. If your baby is receiving care in the Special Care Baby Unit it is likely that he or she will be followed up after discharge at a Paediatric Clinic.

Department of Child and Family Psychological Medicine

These specialised units are based in St Peter's Hospital and Ashford Hospital, it's team consists of Consultant Child Psychiatrists, Clinical Child Psychologists Psychiatric Social Workers and Clinical Nurse Specialists. The team work with individuals and families and offer advice and treatment to children who have severe sleep disturbances, food fads/disorders, behaviour disorders, self-harming tendencies, and other related problems.

Referrals are made either through your GP, Paediatrician or Social Worker.

Child Assessment Service

The Service is based at White Lodge Children's Centre, Holloway Hill, Chertsey. It provides a multidisciplinary and multiagency assessment for children under five with complex needs and disabilities. Professionals from within Woking Area Primary Care Trust and Surrey Children’s Service (Education and Social Care) work together to provide a co-ordinated assessment report that will include a comprehensive and accurate profile of your child's strengths and needs. This will enable 'The Team' to draw up an individual plan for your child, integrating care, therapy and education.

Assessment may take place either at the centre or at home. Special nursery sessions can be set up at the centre if you feel your child is more at ease in this environment. Parents will be invited to participate fully in assessment sessions. These can range from one session to several sessions over a six-week period, concluding with a written report and meeting to determine your child's future needs. A member of the team will be identified to co-ordinate and monitor the agreed plan.

Health or Children’s Services can make referrals. An information leaflet about the service will be sent to parents with their child's first appointment.

Further information can be obtained from the Service Co-ordinator:

Telephone: 01932 567131

The Child Development Team who provide services at the Centre:-

Service Co-ordinator

Consultant Paediatricians

Speech and Language Therapist

Physiotherapist

Occupational Therapist

Nursery Nurse

Clinical Psychologist

Consultant Psychiatrist

Educational Psychologist

Children’s Services Social Worker

In addition:

Surrey Education Service's Learning Support Services provide a range of consultative advice and support.

There is also close liaison with GP's and Health Visitor's.

Both the Paediatric Outpatient Clinics and the Child Assessment Service provide continuing care for children with disability.

Other Services provided at the Centre

Toy Library - White Lodge Centre

This well stocked Toy Library lends toys to any child with a disability, not just those who are members of White Lodge. All the toys are suitable for young children with disabilities and are available on payment of a nominal fee. If parents are looking for a particular toy recommended by a therapist, the library would aim to get it.

For more details contact:

Toy Library Organiser:

Tuesday - 9.30 to 10.30am

Wednesday - 3.00 to 4.00pm

Assessment and Ongoing Therapy for Children Resident in Spelthorne is Provided at the:

Child Development Group

Ashford Clinic

Stanwell Road

Ashford TW15 3DU

The Child Development Group consists of:-

Service Co-ordinator, Consultant Paediatrician, Speech and language Therapist, Occupational Therapist, Physiotherapist, Nursery Nurse and Clinical Psychologist.

Portage Teachers. Health Visitor’s and Social Workers are invited to reviews.

Further information can be obtained from the Service Co-ordinator

Telephone: 01784 883700

SPECIALIST HOSPITAL SERVICES

Children with disabilities who live in Elmbridge are likely to be referred to the children's centre at Kingston Hospital Trust.

Maple Children's Centre

28-34 Wolverton Avenue

Kingston upon Thames

KT2 7QB

Telephone: 020 8546 7711 ext. 2690

This Maple Children's Centre provides specialist services offering treatment, therapy and support for children from birth to 19 years. Some staff make home, school and nursery visits. There is also a Short Term Care Unit to which children are admitted for assessment, treatment or overnight care.

The services provided at the Centre by the Child Development Team:

Paediatric Consultancy

Paediatric Nursing Services

Paediatric Community Nursing

Physiotherapy

Occupational Therapy

Speech and Language Therapy

Social Worker

Portage

Clinical Psychology

Playgroup

Clinics for Vision and Hearing

Orthotics

Feeding Clinic

Communication Clinic

Respite Care

Other Services provided at the Centre.

Maple Playgroup

This playgroup meets twice a week and is for children under 5 years of age who need specialised play and support.

Summer Play Scheme

The play scheme for children aged between 2 and 8 years, runs for 2 days a week during August.

There are a number of special groups run by staff to which parents and children are referred:

Eating Disorder Clinic

Run by CAFC- Child and Adolescent Family Centre (formerly Child Guidance).

Enuresis Clinic

Staffed by paediatrician and school nurse.

Movement and Music

P.A.C.E. (Paediatric Constipation and Enuresis Clinic)

The clinic is held once a week at Roselands Clinic, New Malden, includes- paediatrician, nurse, psychologist and dietician.

Pre-School Communication Group Speech and language therapy and portage.

Swimming Group

Held at Bedelsford School

Respite Care

Maple Children's Centre Short Term Care Unit can also provide overnight care to children with health needs. For further information speak to your Paediatrician or contact the staff on the Unit.

Telephone: 020 8546 7711 ext. 2587

Groups for Parents

Informal Group for Parents of children attending the Centre. Meet, chat and support other parents; sometimes invite a speaker.

SWAPS

Support group for parents of children with Autism and Aspergers Syndrome, meets second Tuesday every month at 8pm. Discussions, speakers, videos - also social events organised for children and their families.

The Maple Children's Centre wants to be responsive to parents' needs. Please tell them if there are groups you would like them to run.

Maple Grapevine - a newsletter for parents by parents, is available from the Centre.

SPECIALIST HOSPITAL SERVICES

Children with disabilities who live in Mid Surrey are likely to be referred to:

Epsom General Hospital

Dorking Road

Epsom

KT18 7EG

Telephone: 01372 735735

Special Care Baby Unit

Some babies are cared for in the Special Care Baby Unit because they are premature or have particular problems requiring extra skilled nursing. A Sister on the unit will liaise with your Health Visitor. If your baby is receiving care in the Special Care Baby Unit it is likely that he or she will be followed up after discharge at a Paediatric Clinic.

Children's In-Patient Care

If your child needs to be admitted to hospital at any time nurses and Paediatricians will care for him or her on the children’s ward. Contact Point:

Casey Ward

Telephone: 01372 735735

Child Development Centre

The Centre brings together a group of specialists who work together to offer treatment, therapy and support for children from birth to adulthood. Children are seen at the Centre or at Paediatric clinics in the children's unit.

The services provided at the Centre by the Child Development Team:

Paediatric Consultancy

Clinical Psychology

Speech and Language Therapy

Paediatric Occupational Therapy

Social Worker

Paediatric Physiotherapy

The Junior Opportunity Group

This group for children under 5 who have special needs meets on Wednesday mornings from 9.30am to 12 noon. Children with their parents can meet a variety of professionals for treatment, therapy and advice. The group gives parents the chance to chat over coffee. During the morning children are seen individually or in groups by one or more professionals. There is also opportunity to play. In addition parents occasionally arrange social activities, amongst themselves, such as outings or meals.

Other Services accessed via The Child Development Team

Community Eating and Drinking Team

The members of the team are:

Occupational Therapist

Speech and Language Therapist

Physiotherapist

Clinical Psychologist

Dietician

Community Consultant Paediatrician

School Nurse

The aims of the team are:

For further information contact:

Speech and Language Therapy Service at St Ebba's Hospital

Telephone: 01372 722212

Other Services

Evening training sessions in the areas of communication and play development.

SPECIALIST HOSPITAL SERVICES

Children with disabilities who live in East Surrey are likely to be referred to the Surrey and Sussex NHS Trust at:

Surrey and Sussex Healthcare NHS Trust

East Surrey Hospital

Canada Avenue

Redhill

RH1 5RH

Telephone: 01737 768511

Children's In-Patient Care

Outwood Ward

This 19 bedded children’s ward admits any child with an acute illness up to their 16th birthday. Your child will be cared for by a named Registered Children’s Nurse and also will be under the care of a Consultant Paediatrician.

Contact information:

Ward Manager

Telephone: 01737 768511

ext. 2610 / 2611

Special Care Baby Unit

Newborn babies who need extra skilled nursing and medical attention for any reason are cared for in SCBU which is situated near to the Delivery Suite and Post natal wards. There are close links with Regional Neonatal units where some babies may be transferred for further Neonatal Intensive Care. The nursing staff will liaise with your own health visitor on your baby’s discharge for support at home. If your baby has continuing nursing needs at the time of discharge, it is likely that a member of the Community Nursing Team also will be involved.

Children's Outpatient Clinics

There is a purpose built children’s outpatient department at East Surrey Hospital. A team of paediatricians, including the paediatric consultants holds daily general paediatric outpatient clinics. There are specialist paediatric clinics such as Asthma, Diabetic, Neonatal and Seizure clinics conducted by the consultants. Regular joint clinics are held with visiting specialists from regional centres in paediatric Cardiology, Neurology, Surgery, Endocrinology.

Satellite consultant clinics are being held at Caterham Dean, Oxted and Dorking Hospitals.

The route of referral for above clinics is mainly through your GP.

Community Paediatric Services

Community Children’s Centre

Maple House

Canada Avenue

Redhill

RH1 5RH

Telephone: 01737 782932

01737 768511 ext. 1302

The services provided at the Centre:

Referrals to the team members are usually from your GP or Health Visitor. However, referrals are also accepted from other professionals such as therapists, social workers, etc. Home visits by the team of therapists may also be arranged in some instances, for pre-school children.

Children with disabilities in the school age group are assessed and monitored by the school health team (a school doctor and school nurse). There is a named school health team for all schools in the East Surrey area and your headteacher will be able to give you the information should you require this.

Important Professional Links

Respite Care

This facility is available at The Beeches in Reigate which is under the management of Surrey Oaklands NHS Trust. Respite care is usually arranged through your social worker.

list of contents

Factsheet 1 - Surrey Children’s Service

Factsheet 2 - Disability Services

How do I contact Children’s Service Social Care?

Teams for Children with Disabilities and their Families

What may Children’s Service Social Care offer me?

Surrey Children’s Service Information Service (SCIS)

What to do if you are not happy with our Services?

Factsheet 3 - Other Useful Services

Advocacy Partners

AMIIS - Advocacy Mediation Independent Investigation Service

National Care Standards Commission (NCSC)

SEAT (South East Advocacy Team)

Surrey Users Network (SUN)

Factsheet 4 - Surrey Children's Disability Register

What is the purpose of the register?

Why should I register my child?

Must my child be on the register?

Who can be on the register?

Eligibility Criteria

Registration Criteria

What rights do I have once my child is on the register?

How do I register my child?

Factsheet 5 - Children’s Service Social Care Contact Addresses

Where can I contact Children’s Service Social Care?

Assessment Teams

Emergency Duty Team

The Creation of the Surrey Children’s Service from September 2002 brought together all education and social services activities centred on those children who have additional needs or who are vulnerable. The service works with families, schools and other services to enable children to have a better life.

Our vision is to provide co-ordinated services through local teams. These should be responsive to the needs of children, families and schools and integrate referral and response through harnessing individual professional skill and expertise. We aim to develop a service which progressively shifts the balance of our work to prevention through early identification and intervention.

Paul Gray

Executive Director for Children and Young People

Ashley Ayre

Head of Children’s Service

Surrey County Council

County Hall

Penrhyn Road

Kingston upon Thames

KT1 2DJ

Telephone: 020 8541 8800

Felicity Budgen

Deputy Head of Service

Surrey County Council

Beaufort House

Mayford Green

Woking

GU22 0PG

Telephone: 01483 728022

The Local Authority Children’s Service Social Care Department has a duty to find out what the needs of disabled people and their carers are and, where possible, to take steps to meet these needs and to provide information on services available. The legislation says that, where a child is assessed as having a disability and therefore by definition is a child in need, the local authority must provide services appropriate to that child's needs in order:

Eligibility Criteria

Many of the duties imposed on the Local Authority in respect of children are general duties. The use of Eligibility Criteria is a means of ensuring equitable access to services whilst at the same time complying with the statutory duties in respect of children. It is also a means of allocating resources to the areas of highest need.

Our decision as to the delivery of a service will therefore be based upon the outcomes we believe we can achieve for children.

An initial assessment of children in need will be undertaken within the time scales specified which identifies the child’s developmental needs and takes into account the capacity of the parents to meet these needs. Family and environmental factors such as family functioning, housing and employment will also be assessed.

How Do I Contact Children’s Service Social Care?

Your first point of contact with Children’s Service Social Care should be the Assessment Team for your area. The worker there will discuss your requirements and if appropriate refer you to the Children with Disabilities Team.

Teams for Children with Disabilities and Their Families

Team Manager (East) Team Manager (West)

The two teams (East and West) were formed in April 1997 to provide and develop services dedicated to the needs of children with a registerable disability and their families.

It is the responsibility of the social worker, in conjunction with other agencies to provide you with an initial assessment of need. If after assessment the child meets the eligibility criteria, the social worker will agree with the parent carer the most appropriate way of meeting the need. This may involve working with a range of statutory and voluntary organisations in your local community.

Priority for services will always be given to children and families in greatest need. Some children may therefore be directed to other appropriate sources of help and support.

What May Children’s Service Social Care Offer Me?

Domiciliary care

Occupational therapy assessments

Respite care, either home-based or residential

Short term breaks

Access to leisure facilities

A social worker will make sure the needs of your child and your family is fully considered and will discuss the options with you. If it is agreed that a service will be provided the cost of the service will be worked out including any contributions from you.

Together you will draw up a ‘Care Plan’, which will list all the needs and all the help that should be provided. To ensure the continuing appropriateness of the service your child care situation will be regularly reviewed with you.

SURREY CHILDREN’S INFORMATION SERVICE (SCIS)

Surrey Children’s Information Service is a telephone helpline and internet service run by Surrey County Council. It gives free information to parents, carers, employers and people working with children. It can also talk to groups of people about childcare issues.

Telephone: 08456 011777

Minicom: 020 8541 8914

Email: chis104@iclwebkit.co.uk

www.surreycc.gov.uk/earlyyearsandchildcare

or www.childcarelink.gov.uk

WHAT TO DO IF YOU ARE NOT HAPPY WITH OUR SERVICES?

Let us know. We can't always get everything right, so please let us know what is wrong or what's worrying you. By doing so you will improve the service for yourself and others. The best starting point is to discuss the issue with your social worker and/or the person providing the service.

If you still then have a problem with the Social Care Service or are unable to resolve the issue, you should contact AMIIS (Advocacy Mediation Independent Investigation Service)

Go To Top Of Page

ADVOCACY PARTNERS

Is a voluntary organisation that supports people with learning disabilities within East Surrey. They recruit, train and support volunteer advocates to befriend a person with a learning disability, and to help that person express their views to the professionals in his/her life.

McMillan House

54 Cheam Common Road

Worcester Park KT4 8RH

Telephone: 020 8330 6644

www.advocacypartners.org.uk

AMIIS (ADVOCACY MEDIATION INDEPENDENT INVESTIGATION SERVICE)

WHAT CAN AMISS DO?

AMISS can give you information, guidance and advice to sort the problems out, or help you make a complaint if necessary. Other organisations provide services on behalf of Surrey Social Care Services, AMIIS can also help if you have a problem with any of these groups.

ABOUT AMIIS

AMIIS is a non-profit making, independent company with a board of directors who include service users and carers. They have a panel of Independent Investigators who look into formal or serious complaints and make sure the outcome is fair and just.

HOW TO CONTACT AMIIS

AMIIS

Astolat

Coniers Way

Burpham

Guildford GU4 7HL

Telephone: 01483 531308

Fax: 01483 301072

Email: mediation@amiis.com

www.amiis.com

Text message: 07814 689867

NATIONAL CARE STANDARDS COMMISSION (NCSC)

The NCSC is an independent public body set up to regulate social care and private and voluntary health care services throughout England.

The following services are required to register with the NCSC:

Care Homes, Children’s Homes, Domiciliary Care Agencies, Residential Family Centres, Voluntary Adoption Agencies, Independent Fostering Agencies, Private and Voluntary Hospitals and Clinics, Exclusively private Doctors and Nursing Agencies.

The Commission is also responsible for inspecting local authority fostering services, local authority adoption services and the welfare aspects of boarding schools.

For Surrey contact

NCSC

The Wharf

Abbey Mill

Eashing GU7 2QN

Telephone: 01483 413540

Email: enquiries.eashing@ncsc.gsi.gov.uk

www.carestandards.org.uk

SEAT (SOUTH EAST ADVOCACY TEAM)

SEAT is made up of four leading charities (Blatchington Court Trust, LOOK-London, Royal London Society for the Blind and RNIB). SEAT supports blind and partially sighted people and offers advocacy services for parents/carers of children with a visual impairment.

Myrtle Robinson

Pre 16 Education Officer SE

RNIB

105 Judd Street

London WC1H 9NE

Telephone: 020 7391 2262

SURREY USERS NETWORK (SUN)

SUN provides information, advice, and a voice for people who use health and/or social care services. They support service users to give their feedback to service providers on current services and future service planning. It is a user led, non-profit making organisation mostly funded by Surrey County Council.

Surrey Users Network

Astolat

Coniers Way

Burpham

Guildford GU4 7HL

Telephone: 01483 456558

Fax: 01483 456561

Email: sun@sun.org.uk

Go To Top Of Page

The Surrey Children's Disability Register is jointly owned by Surrey County Council's Children’s Service (Social Care and Education) and Surrey NHS Primary Care Trusts. It was established in consultation with parents and voluntary services and meets the requirements of the Children Act 1989.

What is the purpose of the register?

The purpose of the register is to enable children’s services, health (the statutory agencies) and the voluntary services to work more closely together to identify and plan for children and young people with a disability and their parents/carers.

Why should I register my child?

The register enables the statutory agencies to:

The register also forms the basis of a mailing list to inform and consult children/young people and parents/ carers about new and existing services, gaps in services, changes to welfare benefits, playgroups, holiday schemes, etc.

Must my child be on the register?

Registration is on a voluntary basis and no child will be registered without parental consent. You do not have to be registered to receive any services. However, the more we know about children with disabilities in Surrey the more effectively we can plan services.

Who can be on the register?

Any child or young person who meets all of the eligibility and registration criteria.

ELIGIBILITY CRITERIA

REGISTRATION CRITERIA

Not all disorders and conditions will meet the registration criteria.

Any child meeting the registration criteria will be registered under one of the following primary disability categories:

What rights will I have once my child is on the register?

You will have full access to information held about your child and you will be sent a print-out of the information held on a regular basis:

No child's name can be removed from the register without parental consent.

HOW DO I REGISTER MY CHILD?

You may wish to discuss registration with your child's health visitor or paediatrician

or Contact:

Register Administrator

Surrey Children's Disability Register

Surrey Children’s Service – PRD Team

County Hall – Rm194

Penrhyn Road

Kingston on Thames

Surrey KT1 2DJ

Telephone: 020 8541 8792

Go To Top Of Page

SOCIAL CARE

CONTACT ADDRESSES

Where can I Contact Children’s Service Social Care?

All initial enquiries for children and families should be made to the Assessment Team, this may be by telephone, letter or in person.

Contact the office for your area:

Mid Surrey Assessment Team

For Elmbridge, Epsom & Ewell and Mole Valley

Surrey County Council Local Office

Civic Centre

High Street

Esher KT10 9SD

Telephone: 01372 832500

Fax: 01372 832502

South West Surrey Assessment Team

For Guildford and Waverley

SCC South West Surrey Area Office

Grosvenor House

London Square

Cross Lanes

Guildford GU1 1FA

Telephone:01483 517777

Fax: 01483 517605

East Surrey Assessment Team

For Reigate & Banstead and Tandridge

Noke Drive

Redhill RH1 4AX

Telephone: 01737 737377

Fax: 01737 737378

North Surrey Assessment Team

For Runnymede and Spelthorne

Stanwell Road

Ashford

Middlesex TW15 3DU

Telephone: 01784 248313

Fax: 01784 256601

West Surrey Assessment Team

For Surrey Heath and Woking

Trizancia House

74 Chertsey Road

Woking GU21 5BJ

Telephone: 01483 518484

Fax: 01483 518480

The Emergency Duty Team provides an emergency social work service for urgent social care problems that arise outside normal office hours. They will respond to any crisis or emergency that cannot wait until the next working day.

Telephone: 01483 517898

Child Protection

Anyone with concerns about the safety or welfare of a child should contact the Children’s Service Assessment Team for the appropriate area, or out of office hours the Emergency Duty Team.

Go To Top Of Page

EDUCATION

SURREY'S SCHOOLS & EDUCATIONAL PROVISION

Primary Education

Primary education is provided to children aged 4 to 11 years and may take place in either Infant, First, Junior or Primary Schools. The vast majority of children with special educational needs, given appropriate support, are educated in primary schools.

Secondary Education

All of Surrey's secondary schools are comprehensive schools and cater for children of all abilities. The majority cater for the age range 11-16, from which students will normally transfer to Sixth Form College or a College of Further Education. Some schools cater for students aged 11 to 18 years and have sixth form provision as part of the school. As with primary education, a similar provision is made for children with special educational needs.

Special Education

The LEA has 25 special schools, which provide for children with a wide range of special educational needs. In addition there are 39 day units attached to ordinary mainstream schools. Further information can be obtained from one of the four local education offices listed below.

North East Area Education Office

(Elmbridge, Spelthorne, Epsom & Ewell)

Alexander House

55a-61a Commercial Way

Woking GU21 6HN

Telephone: 01483 518100

North West Area Education Office

(Runnymede, Surrey Heath and Woking)

Alexander House

55a-61a Commercial Way

Woking GU21 6HN

Telephone: 01483 518100

South East Area Education Office

(Mole Valley, Reigate & Banstead, Tandridge)

Omnibus

Lesbourne Road

Reigate RH2 7JA

Telephone: 01737 737600

South West Area Education Office

(Guildford, Waverley)

Grosvenor House

London Square

Cross Lanes

Guildford GU1 1FA

Telephone: 01483 517900 / 517901

There is also a number of Foundation schools in the above categories.

Educational provision for children unable to attend school

The service provides education for children of statutory school age who are out of school as a result of illness, exclusion or any other reason.

Teaching may be at a Pupil Referral Unit, a hospital, at home or other venue and will be individually planned to suit the needs of your child.

The teaching will normally be provided when your child has been out of school for 15 days. The service will support you and your child in making a successful return to school.

Individual Education Plan

Whenever a child has been identified as having special educational needs, his or her school will ensure that an individual educational plan is drawn up in consultation with parents. The plan will identify individual work programmes, performance targets, review dates, findings and decisions and information from other professionals such as; speech therapists, physiotherapists, etc. The plan will be reviewed regularly by the school to ensure progress. Parents should have a copy of the IEP.

Annual Reviews

If your child has a 'Statement' it will be reviewed annually by the LEA. In Year 9 a special type of review is held. The review is designed to be multi-agency and to ensure a smooth transition for the young person from when they reach 16 up to adulthood. For any child who is registered or registerable as disabled Children’s Service will offer a full assessment of need during their final year in full time education in accordance with the Disabled Persons Act 1986. (Contact your social worker for more information).

Surrey Children’s Service will send you and your child a booklet "Options for the Future" when they are 12 to help you to plan.

Further Education

Further education (FE) normally refers to the period of education between the ages of 16 and 19 years. In approved cases this will include attending an independent special school or college. The Further Education and Higher Education Act can extend the age to 25 (your child must have approved funding). Your child may stay on at his or her own school or attend a local college.

Many local colleges offer specific courses for pupils with special needs. The courses are generally full time and last between one and three years. Frequently a Community Service Volunteer, who can help with a range of needs, including mobility and personal care, assists children with disability at college. For further information: ask your child's school for a copy of the Careers Enterprise Booklet 'A Parent's Guide'.

Grants for Further Education

Surrey residents applying for, or following, full-time further or higher education courses may qualify for a grant. Enquires should be made to the:

Head of Awards Service

Surrey County Council

County Hall

Penrhyn Road

Kingston upon Thames

KT1 2DJ

Telephone: 020 8541 9494

Go To Top Of Page

Transport

Subject to eligibility criteria, transport is provided without cost between home and school for children with special needs attending day and boarding schools. The type of transport used depends upon individual needs and ranges from buses to hired taxis and coaches. If necessary the Authority employ escorts to accompany children on the journey to and from school. Parents who want to know more about this should contact the Local Education Office first. If you choose to transport your child in your own car, you may be eligible for help with the cost, dependent on individual circumstances. Speak to the Headteacher of your child's school about this first.

Go To Top Of Page

SPECIAL EDUCATIONAL NEEDS

What are special educational needs?

As many as one in five children may at some time need extra help with their education and they are said to have "Special Educational Needs".

There are varying levels of Special Needs, including a small number of children who have severe problems in learning and who need to have special kinds of help over several years. These children are likely to have a written description of their needs and what is to be done for them. This is called a Statement of Special Educational Needs and is drawn is by the Local Education Authority (Surrey County Council).

Nowadays most children with Special Educational Needs attend mainstream schools, with additional support provided where necessary. A minority of children may benefit from the gentler routine, the smaller groups, or the very specialised teaching and educational aids available in special schools and classes. There are various stages to the process of assessing your child’s needs.

The Special Educational Needs section of the website aim to help you understand those stages and guide you through the process so that you can get the most appropriate help for your child.

www.surreycc.gov.uk/learning

Pre-school children with special educational needs

If you think your child is slow in developing or is not hearing or seeing properly speak to your nursery or playgroup leader, health visitor, your family doctor or someone at your local Child and Family Consultation Centre. It is important to get help as soon as possible.

Children with serious learning difficulties benefit greatly from early help with their education. Surrey has a home teaching service, called Portage Early Education Support Service, which is for young children whose development is delayed.

There are also visiting advisory teachers for children with serious visual or hearing difficulties from Physical and Sensory Support Service. (Section 2 Factsheet 9)

These services will help you to develop your child’s skills. There may be a place for your child in a nursery school class, or extra help at a playgroup.

Advice on all these services can be obtained from an educational psychologist (see Section 2 Factsheet 10) or

Contact the call centre on

Tel: 08456 009 009

Email: surreyinfo@surreycc.gov.uk

You may also find it useful to talk to other parents of children with learning difficulties or to a voluntary organisation.

(see Sections 3 and 7)

School age children with special educational needs

In Surrey, there is a clearly defined statutory assessment process which helps schools plan programmes to support children’s learning in partnership with their parents. This section guides you through the various stages of the Assessment Process and explains the criteria required for a statutory assessment. (Code of Practice, 1996 Education Act)

What is the Code of Practice?

The Code of Practice on the Identification and Assessment of Special Educational Needs (SEN) came into effect on 1 September 1994 and was issued by the Government to provide guidance to Local Education Authorities (LEAs) and governing bodies on their responsibilities towards all children with SEN. The 1996 Education Act stated that LEAs and governing bodies must have regard to the provision of the Code.

Schools must consider what the Code of Practice says when they draw up their policies for children with special educational needs. Among the things the schools policy will tell you are:

Your child’s school must give you a copy of their policy if you ask for one.

What is the special educational needs assessment process?

The first stages of the process are school-based:

School Action (formerly Stage 1 and Stage 2) aims to help the child get more help from his or her teacher.

If this does not overcome the child’s learning difficulties, the school will involve the child’s parents and draw up an Individual Education Plan.

Then, if this then does not help overcome the child’s learning difficulties, the school will put into practice:

School Action Plus (formerly Stage 3 and Stage 4) when the school involves specialist help from outside the school.

If the child still does not progress, the child’s case may be considered by the Area Special Educational Needs Panel which will decide if the child’s needs are severe, so as to require a Statutory Assessment.

A Statutory Assessment means that the child will be seen by an Educational Psychologist and also by a doctor or medical officer who will advise the Local Authority on the difficulties and learning needs of the child.

The professional advice received during the Statutory Assessment will then be considered by the Local Education Authority which will decide if the child requires a Statement of Special Educational Needs.

A Statement of Special Educational Needs is a document which sets out the child’s needs and states the special educational provision the child requires. The Statement will also determine the type and name of school at which the child’s needs can be met.

Most children respond to help within the school at School Action and School Action Plus.

Proposed Statement

If as a result of the assessment, it is decided to make a formal Statement setting out your child's special educational needs, this will specify the special educational provision considered appropriate to meet these needs and any additional help required. You will be sent a Proposed Statement along with all the reports that have been collected during the assessment.

You will be given 15 days in which to respond to the Proposed Statement. If there is any aspect that you are not certain about or are unhappy with, make an appointment to see your child's case officer at the Local Area office.

You are invited to express a preference for the educational establishment you would like your child to attend.

You cannot formally appeal against a Proposed Statement; this is a time for consultation and discussion between you and the Education Authority.

Final Statement

After considering your views, the Authority will decide to either confirm the Proposed Statement as a Final Statement or issue a revised Final Statement, or make no statement at all. You will be told, in writing, of the decision. If you disagree, you have a right to appeal and you will be advised how to do this.

There is a formal duty on the Authority to review the statement every 12 months on the anniversary of its completion.

Post 16 young people with special educational needs

Education for young people with special educational needs does not stop at 16. Depending on your child’s interests and abilities, he or she can stay on at an ordinary or special school, or can move on to a college for further education. Many schools have developed "link" courses with colleges so that pupils in their last years at school can go to a college on a part-time basis. These courses help to prepare young people for further education by letting them experience a college and try out a range of new subjects.

Further education is available for young people over the age of 16. If your child has a statement of special educational needs, further education will be considered when the Transition Plan is drawn up when he or she is 14.

Many students with learning difficulties or disabilities attend ordinary courses at college with the help of special equipment or support. Some colleges run special courses or have units for these students. Your local college will have a member of staff for more information or advice. Students whose needs cannot be met by a college of further education may be able to get a place at an independent specialist college.

Universities and colleges offer education at a level beyond GCSE A-level standard for students from about the age of 18. It is open to all young people who have the ability to benefit from it.

If you have any questions about the choices open to your child after 16, the careers service can provide help and advice to you and your child.

Help available to parents

The 1988, 1993 and 1996 Education Acts and SEN and Disability Act 2001 gave greater powers and responsibilities to individual schools. The SEN Code of Practice 2001 gives guidance to everyone on how to implement the law. Parents’ involvement is very important. The 'Statementing Process' is sometimes complicated and may cause some parents to feel stressed if they think they are unsupported through the procedure. Help is available from a number of sources.

Go To Top Of Page

Educational Services Available Before the Age of 3 Years

It is generally recognised and acknowledged that parents are the main educators of young children. The first stage of learning for your child is usually achieved through creative play, social interaction, and natural expression. Stories, games, songs and specially chosen toys and materials address the needs of young children. Your Local Library has a wide selection of books, video and audiotapes that you or your child may hire. Toy Libraries are full of educational toys that you can borrow for a nominal fee; The National Association of Toy and Leisure Libraries (registered charity) publish a wide variety of books and leaflets on play. They can also advise you about your nearest toy library.

Contact them at:

68 Churchway

London NW1 1LT

Telephone: 020 7387 9592

www.natll.org.uk

Playgroups and Crèches

Contact with other children contributes to social development and greatly benefits your child. Day Care, either on a sessional or full day basis can take place in day nurseries, kindergartens, crèches, playgroups, parent and toddler groups or in yours or a childminders home. They aim to provide a safe, friendly and happy

environment where your child can learn

through play with other children. Do talk

to your local Playgroup Leader about your child's requirements and visit several groups to compare facilities.

Surrey Children’s Information Service (SCIS)

Surrey Children’s Information Service is a telephone helpline and internet service run by Surrey County Council. It gives free information to parents, carers, employers and young people working with children. We can also talk to groups of people about childcare issues.

Telephone: 08456 011777

www.childcarelink.gov.uk

or:www.surreycc.gov.uk/earlyyearsandchildcare

Portage

This is a home visiting educational service, which offers support to parents in the early care and development of their child. Any child, whose learning or development is causing concern, as well as those with recognised disability, could benefit from PORTAGE. A trained home visitor visits the family weekly and helps parents to design activities aimed at stimulating new development. Each activity is modelled by the home visitor and then practised by the family daily. Referral to the Portage co-ordinator is usually by the Consultant Community Paediatrician.

Further information can be obtained by contacting:

Surrey Portage Service

County Co-ordinator

SE Area Office

Omnibus

Lesbourne Road

Reigate RH2 7JA

Telephone: 01737 737979

Physical and Sensory Support Service

See Section 2 Factsheet 9

Pre-school Speech and Language Playgroups

There are a number of playgroups and nurseries that place particular emphasis on speech and language development. For further information on this service contact your Speech and Language Therapist (see Section 1 Hospital and Community Services, factsheets 2&3).

Makaton

The Makaton Vocabulary is a Language Programme using signing and speech, which provides a basic, means of communication and encourages language development in children with communication difficulties. Training workshops are provided for parents and there is a network of trained professionals who can give advice and support. For further information contact:

Makaton Vocabulary Development Project

31 Firwood Drive

Camberley GU15 3QD

Telephone: 01276 61390

Educational Provision in Surrey

Surrey Children’s Service believes that the experience of mainstream education should be made available to children where it is appropriate. This experience will be gained for the majority of children in inclusive mainstream placements, for others inclusion will require close collaboration between mainstream and special schools, so that the needs of all children may be met, as far as possible, by local maintained provision.

Nursery Education

Surrey County Council provides Nursery Education for children aged 3 to 5 years in nursery classes, attendance is usually on a half-time basis. The classes may be attached to Infant, Primary, or Special Schools to provide for hearing or visual impairment, physical disabilities, language difficulties, emotional or learning difficulties.

Children with Special Educational Needs

The Children’s Service works closely with The Health Service to ensure that each child's educational needs are identified as early as possible. If, during assessment, in the early years it is felt that your son or daughter will need additional help at school, the Community Health Services will contact the Area Special Needs Manager at the local Education Office. This is called 'Notification of Special Educational Needs'

Go To Top Of Page

PHYSICAL AND SENSORY SUPPORT SERVICE

This is a county wide service of Specialist Teachers who provide support and advice for children and students with physical disability, hearing and/or visual impairment.

Following a referral the advisory teachers provide advice and support in Surrey nurseries, mainstream and special schools as well as colleges or universities appropriate to the very individual needs of the child, pupil or student.

The service aims to promote facilitative learning environments and support schools and colleges in raising the achievements of pupils and students and including them fully through its advice on appropriate environments, strategies and individual programmes

Referrals to the Service can be made by parents or professionals with parent’s/guardian’s permission.

Physical and Sensory Support Service - Hearing

Surrey Children’s Service have a network of specialist teachers and support for the hearing impaired from infancy to students at college, for those with moderate hearing loss to the profoundly deaf. A team of peripatetic teachers for hearing impaired assist at diagnostic Audiology clinics.

Where a baby or toddler is found to have a hearing difficulty a teacher can visit the home regularly to advise and support the family as well as the nursery or pre-

school to support staff with the skills and knowledge they need to assist the child’s development.

A few children attend Resource Provision for the hearing impaired within the mainstream school. Here they can receive more intensive help from the specialist teachers while still being included in the ordinary classes.

For further information contact:

Physical & Sensory Support Service – Hearing

Mid Surrey Area Office – Opus II

Bay Tree Avenue

Kingston Road

Leatherhead KT22 7SY

Telephone: 020 8541 7808

Physical and Sensory Support Service - Vision

The service is staffed by qualified and experienced teachers and provides support for children and students with a visual impairment attending Surrey schools and colleges.

The Advisory Teachers for the Visually Impaired work with the under 5’s parents, carers and teachers to empower them with the skills and knowledge they need to assist their child’s development. Advice and support is given on appropriate environments, strategies and individual programmes in liaison with other professionals involved to plan for the child’s entry into school.

For further information contact:

Physical & Sensory support Service – Vision

South West Area Office

Grosvenor House

London Square

Guildford GU1 1FA

Telephone: 01483 517577

Physical and Sensory Support Service - Physical Disability

This service is staffed by experienced specialist teachers and provides support for children with a physical disability attending Surrey schools and nurseries.

At pre-school and school stages the Advisory Teachers work with the children’s parents, teachers and carers to empower them with the skills and knowledge they need to assist the child’s development. Advice and support is given on appropriate environments, strategies and individual programmes in liaison with other professionals. The Advisory Teachers work with schools and other professionals to plan for the child’s entry into school and continue to visit the child at school according to need.

For further information contact:

Physical & Sensory Support Service – Physical Disability

Omnibus

Lesbourne Road

Reigate RH2 7JA

Telephone: 01737 737760

EDUCATIONAL PSYCHOLOGIST

Educational Psychologist

The Surrey Children’s Service provides the Local Education Authority with a range of psychological services designed to enhance the learning, development and general well being of children and young persons.

Educational Psychologists are trained to work in partnership with teachers and parents to investigate the educational needs of children and to advise action plans to meet those needs.

They can provide advice if you are concerned about your child's development, behaviour, rate of learning or future educational needs.

Some children may need special provision before they start school or extra help at ordinary school or even full-time special school. An Educational Psychologist will talk to you about what is available. They work closely with pre-school services and parents to ensure children receive appropriate education.

HELP AND ADVICE AVAILABLE TO PARENTS

Partnership With Parents

Partnership with Parents (PwP) is a service of Surrey County Council and aims to ensure that parents are able to play an informed part in any decisions about the educational provision made to meet their son or daughter’s special educational needs (SEN), and to build partnerships between parents, the LEA and schools. We do this by providing information, advice and support to parents of children with SEN at all stages of their child’s school life, from pre-school early diagnosis through to school leaving at 16 or 19 and for those with learning difficulties and/or disabilities to 25. The PwP service offers:

Partnership with Parents

Furzefield Primary School

Delabole Road

Merstham

Surrey RH1 3PA

Telephone: 01737 737300

Fax: 01737 737308

Email: pwp.ses@surreycc.gov.uk

www.pwpsurrey.org

Mediation

In a very few cases where issues about support for children with SEN have not been resolved, mediation might be appropriate. This involves an impartial third party mediator who will help both parties to identify the issues that need to be sorted out and what can be done to resolve them.

For further information contact:

Partnership with Parents

Telephone: 01737 737300

Or, if your issue is to do with a school, your nearest mediation service:

East Surrey Community Mediation

(Reigate, Banstead & Tandridge)

Telephone: 01737 248559

Guildford Community Mediation Service

Telephone: 01483 301010

Mid Surrey Mediation Service

(Mole Valley, Epsom& Ewell)

Telephone: 01372 363744

Waverely Community Mediation Service

Telephone: 01252 338355

Elmbridge, Runnymede, Spelthorne, Surrey Heath and Woking: ring the nearest of the above numbers

If you feel mediation would be of benefit in relation to the statementing process you should contact:

Global Mediation Ltd (SEN)

107-111 Fleet Street

London EC4A 2AB

Telephone: 0800 064 4488 (freephone)

Contact details for the local area education offices are on Factsheet 6 (Section 2)

IPSEA - Independent Panel for Special Education Advice

(Registered charity)

IPSEA can provide:

Independent Panel for Special Education Advice

6 Carlow Mews

Woodbridge

Suffolk IP12 1EA

Telephone: 0800 0184016 (freephone)

www.ipsea.org.uk

ACE - The Advisory Centre for Education

(Registered charity)

ACE is an independent advice centre for parents offering information about state education for 5-16 year olds. It offers advice on many topics including exclusion from school, bullying, SEN, and schools admissions appeals.

1c Aberdeen Studios

22 Highbury Grove

London

N5 2DQ

Telephone: 020 7354 8321

Freephone helpline: 0808 800 5793

(2-5pm Mon - Fri)

www.ace-ed.org.uk

Network '81

(Registered charity)

A national network of parents working towards properly resourced inclusive education for children with special needs. It also provides training for parents and issues publications.

Network '81

1-7 Woodfield Terrace

Stanstead

Essex CM24 8AJ

Telephone: 01279 647415

Helpline: 0870 770 3306

(10-2 Mon – Fri)

www.network81.co.uk

Further advice and support may also be available from the support organisation that relates to your child's disability.

Go To Top Of Page

There are many transitions in a child/young person’s life. The transition to adulthood presents all young people and their families with many challenges. However, for a young disabled people this can be more difficult due to all the different agencies involved, choices available and the planning needed.

Surrey Children’s Service (Education and Social Care), Careers/Connexions, Health and Voluntary Services all work together to make the process as smooth as possible for young people and their families.

Transition Protocol

Surrey has a multi-agency transition protocol that details all the different actions that need to happen from the Year 9 Review onwards.

We have produced a booklet called "Options for the Future" for parent carers and a similar guide for young people in an easy to understand format. Both these booklets will be sent to the young person and parent carers in Year 8.

"Options for the Future" will also be available on the Partnership with Parents website from June 2003.

www.pwpsurrey.org

Both booklets will give information about

and much more

Surrey has a

County Transition Advisor

Furzefield Primary School

Delabole Road

Merstham RH1 3PA

Telephone: 01737 737300

Connexions Service

What is Connexions?

Connexions is a new advice and guidance service for all young people aged 13 -19 and up to 25 for those with Special Needs.

Connexions aims to ensure a smooth transition into adult life for all young people.

Connexions will provide access to information and support on a wide range of issues including:

Connexions Surrey

Connexions House

83 East Street

Epsom

KT17 1DN

Tel: 01372 746500

www.connexionssurrey.co.uk

VT Careers Management Surrey (formerly Surrey Careers Service)

VT Careers Management Surrey is part of the Connexions Surrey partnership. It continues to offer the following services to young people in Surrey:

Camberley 01276 27172

Epsom 01372 722291

Guildford 01483 576121

Redhill 01737 773801

Staines 01784 455081

Woking 01483 760041

The Learning and Skills Council

The Learning and Skills Council is responsible for funding and quality of all post 16 education and training in this country.

Surrey Learning Skills Council is based in Woking.

Tel: 01845 019 4145

Go To Top Of Page

Relief Care - Getting A Break

Caring for your disabled child is a demanding task and sometimes a little help is needed for you to keep going. Carers need regular breaks, relatives, friends and neighbours can sometimes help you share the care. This helps you and it also gives children the opportunity to develop their own social networks.

Formal community services can give this support through the provision of respite care. Social Care and/or the Primary Care Trusts may provide this. All services are subject to meeting all eligibility criteria and a full assessment by your social worker who will identify the most appropriate service to meet your needs. Think carefully about your needs and then ask your social worker what is available locally.

Surrey Children’s Service contracts from the following residential services.

Cherry Trees

This is a residential unit providing a short stay care service to children with severe learning disabilities. It also provides a service to children with physical disability who have limited mobility or who use wheelchairs. The home has places for twelve children during the day and beds for eight. Age range up to 18 years. Contact:

Cherry Trees

School Lane

East Clandon

Guildford GU47RS

Telephone: 01483 222506

Pastens National Children's Home

Pastens is a residential unit providing short and long stay service to children with severe learning disabilities and/or with a physical

disability who have limited mobility, including users of wheelchairs. Care can be provided for children who have health needs, those who require care/attention at night, and children with behavioural problems. Age range 5 to 19 years. Contact:

Pastens NCH

Pastens Road

Limpsfield

Oxted Surrey

Telephone 01883 723110

Squirrel Lodge

Squirrel Lodge is a Surrey Children’s Service residential home. Respite care is provided for ten children with mild/moderate and severe learning disabilities, who may also have physical disabilities. Age range 10 to 18 years.

Squirrel Lodge

47 Mount Hermon Road

Woking GU22 7UN

Telephone: 01483 760515

Wells House

This is a Surrey Children’s Service residential home, which offers respite care services for children from 6 to 18 years. It provides a service to children with mild/moderate or severe learning disabilities including children with limited mobility and wheelchair users.

Wells House

Spa Drive

Epsom KT18 7LR

Telephone: 01372 720839

If after an assessment Squirrel Lodge or Wells House is considered appropriate to meet the needs of the child, your social worker will make a referral.

White Lodge Cottage

This is a residential short-stay unit for children aged 0 to 12 years with any disability. The Cottage offers respite care ranging from a few hours during the day to two weeks. An emergency service is usually available. The staff are trained to look after children with special needs and will administer any drugs that are necessary. If you would like to know more about the service or would like to look round, please contact:

White Lodge Cottage

White Lodge Centre

Holloway Hill

Chertsey KT16 OAE

Telephone: 01932 568365

PCT Residential Services

The Beeches

The Beeches is a residential unit providing short stay care to children that live in the East and Mid Surrey PCT areas, aged between 5 and 16 years. The Beeches is a large detached property with excellent facilities and has both indoor and outdoor play areas. Care is offered to children with mild or moderate learning disabilities and children who have behaviour that challenges. Referrals may be made through your social worker.

The Beeches

3 Oak Road

Reigate RH2 OPB

Telephone: 01737 275988

Maple Children's Centre

This short stay unit can provide overnight care to children with health needs who live within the Kingston Hospital Trust area. For further information speak to your paediatrician or contact the staff on the Unit.

Maple Children's Centre

Short Term Care Unit

28-34 Wolverton Avenue

Kingston upon Thames KT2 7QB

Telephone: 020 8546 7711 ext 2587

Surrey Children’s Service occasionally purchases from the following providers.

The Children’s Trust – Health and Family Services (H&FS)

H&FS provide programmes for children with profound disabilities, including short term (respite), transitional and residential care. All children have comprehensive assessments and individual care plans. Services, with 24 hour on-site medical cover, include:

H&FS has particular expertise in providing care, treatment and education for children with metabolic diseases, cerebral palsy, cystic fibrosis, epilepsy and rare genetic disorders.

H&FS operate an open referral system.

For further information please contact:

H&FS Manager

The Children’s Trust

Tadworth Court

Tadworth

Surrey KT20 5RU

Telephone: 01737 357171

Fax: 01737 371244

The Grange

The Grange provides residential short stay care for children up to 19 years who have severe learning difficulties including those who have a physical disability and children with health needs. For more information contact:

The Grange

Headley Road

Grayshot,

Hindhead

Telephone: 01428 606920

Care at home

Crossroads Care Attendant Scheme

(Registered charity)

Crossroads provides a relief visiting service to those caring for a child or adult with special needs at home. Trained Care Attendants can take over the parent's role and look after your child in your home for a few hours to allow some free time. Children with any physical disability or learning difficulties can be visited regularly or on an occasional basis, such as evenings, school holidays or at times of particular difficulty. The aim is to provide a service sensitive to peoples' needs and to help parents maintain a normal family life. There is no charge but donations are welcome to help cover staff costs.

Local Contacts:

Elmbridge Crossroads Caring for Carers

Telephone: 01372 469942

Also runs a Saturday club for 5-19 year olds

Epsom & Ewell Crossroads

Telephone: 01372 743929

Guildford Crossroads

Telephone: 01252 313323

Mole Valley Crossroads

Telephone: 01306 877071

Reigate, Banstead & Horley Crossroads

Telephone: 01737 246992

Spelthorne Crossroads

Telephone: 01784 446294

Tandridge Crossroads

Telephone: 01883 714641

Woking & Surrey Heath Crossroads

Telephone: 01483 766336

Domiciliary Care Providers

We use a number of agencies to provide care in the home, please discuss your needs with your social worker.

Link Family Scheme

Aims to link parents who have a child with special needs to a local family or individual who would be willing to share their care in their own home for short periods to give parents a break. The child has a chance to make new friends and an opportunity, like all children, to spend time away from home to share experiences with their own special link family. Please discuss with your social worker.

Rainbow Trust

(Registered charity)

The Rainbow Trust was founded to provide respite and support at home to children with a life threatening or terminal illness and their families. Immediate help is on hand through the Rainbow Trust Family Support Service and at the Charity’s respite centres.

All care is free. The Rainbow Trust’s family support worker teams offer practical and emotional help in the family’s own home.

For further information contact:

Rainbow House

47 Eastwick Drive

Great Bookham

Surrey

KT23 3PU

Telephone: 01372 453309

(24 hr helpline)

www.rainbowtrust.org.uk

Runnymede Care Assistants Scheme (Registered charity)

Telephone: 01932 571616

Adoption UK (formerly PPIAS)

(Registered charity)

UK-wide support network for prospective and established adoptive, providing information, advice and support throughout the adoption process.

Through our Experience Resource Bank adopters can be put in touch with others who have experience of mutually similar adoption issues.

Bi-monthly magazine, library and Helpline.

Adoption UK

Manor Farm

Appletree Road

Chipping Warden

Banbury OX17 1LH

Telephone: 0870 7700 450

AFASIC - Overcoming Speech Impairment (Registered charity)

AFASIC works on behalf of children and young people with speech and language impairments. It can offer advice and information to parents; training for parents and practical guidance for young people and their parents. Local groups made up of parents and professionals meet regularly. For more information about your nearest group contact:

AFASIC

69-85 Old Street

London EC1V 9HX

Tel: 08453 555577 (lo-call helpline)

Telephone: 020 7841 8900

www.afasic.org.uk

Association for Spina Bifida & Hydrocephalus (ASBAH)

(Registered charity)

Offers practical help and information to individuals with spina bifida and/or hydrocephalus and their families. Contact:

42 Park Road

Peterborough PE1 2UQ

Telephone: 01733 555988

www.asbah.org

Birth Defects Foundation

(Registered charity)

BDF creates awareness and encourages prevention of birth defects, funds medical research and provides a professionally manned service for families.

Contact:

BDF Centre

Hemlock Way

Cannock WS11 2GF

Telephone: 08700 707020

www.birthdefects.co.uk

British Epilepsy Association

(Registered charity)

The aim of the association is to provide advice, information and support for people with epilepsy and their carers. There is a local group based in Guilford.

For details contact:

Telephone: 01372 744302

Helpline: 0808 800 5050

www.epilepsy.org.uk

CLIMB

(Registered charity)

(Formerly the Research Trust for Metabolic Diseases in Children) aims to raise money for research into metabolic diseases and supports families by providing information and counselling. Contact:

CLIMB Building

176 Nantwich Road

Crewe CW2 6BG

Telephone: 0870 770326

(Mon-Fri: 9.30-4.30)

www.climb.org.uk

Contact A Family

(Registered charity)

This is a national charity, which supports families who have children with different disabilities and special needs. Contact A Family links with over 500 independent self-help/mutual support groups and offers them support and advice. An important part of linking up families nation wide is the information services - parents and professionals can be put in touch with self-help groups or with individual families whose child has a similar disability for mutual support. There is a quarterly newsletter 'Share an Idea'. Contact:

Telephone: 020 7608 8700

Helpline: 0808 808 3555

(Mon-Fri: 10–4)

www.cafafamily.org.uk

Local Area Representative:

Caroline Hunter

Telephone: 01784 460842

Cystic Fibrosis Trust

(Registered charity)

The Cystic Fibrosis Trust provides information about all aspects of living with Cystic Fibrosis (CF), as well as practical, emotional and financial support to those affected by Cystic fibrosis.

11 London Road

Bromley BR1 1BY

Telephone: 020 8464 7211

Helpline: 0845 859 1000

www.cftrust.org.uk

Diabetes UK

(Registered charity)

Diabetes UK is the charity for people with diabetes. We fund medical research, provide information and support to people with diabetes and campaign on their behalf.

10 Parkway

London NW1 7AA

Telephone: 020 7424 1030

www.diabetes.org.uk

Disability Information in Surrey

Gives free, confidential and impartial information on anything to do with living with disabilities. This includes information on self help groups, equipment, employment, holidays, education, benefits, recreation access and transport.

Telephone: 01306 875156

www.diss.org.uk

Or

Disabled Citizens Advice & Support Service: 01483 860551

Elmbridge: 01932 248660

Epsom: 01372 735243

Runnymede & Spelthorne: 01932 566622

Tandridge: 01883 722593

Woking: 01483 747400

Downs Syndrome Association

(Registered charity)

Aim of Group - to provide information on education, portage, speech, legal matters, health and welfare and to put parents in touch with local contacts. For more information:

Telephone: 020 8682 4001

(10am-4pm daily)

www.downs-syndrome.org.uk

DOWN’S SYNDROME EDUCATIONATRUST

(Registered charity)

The aim of the Trust is to provide advice, information and support to families. The Trust issues regular newsletters and organises workshops and conferences. Contact:

The Sarah Duffen Centre

Belmont Street

Southsea PO5 1NA

Telephone: 02392 855330

www.downsed.org

Face To Face

A befriending service for parents of newly diagnosed children with special needs. A volunteer parent who has been through a similar experience can offer you someone to talk to about your feelings. They can provide support and friendship. For details of your nearest group contact:

Lingfiled and Dormansland Community Centre

High Street, Lingfiled , RH6 7AB

Telephone 01342 832123

jane.cushnie@mencap.org.uk

julia.cohen@mencap.org.uk

FYD – FRIENDS FOR YOUNG DEAF PEOPLE

(Registered charity)

FYD aims to encourage and enable young deaf people to develop themselves and to become active members of their community. FYD organises projects and leadership courses for deaf, partially hearing and hearing young people and all other members of the family. For further details contact:

Friends for Young Deaf People

120a Abbey Street

Nuneaton CV11 5BX

Telephone: 02476 641017

Fax: 02476 641517

Text phone: 02476 328083

www.fyd.org.uk

Headway – the brain injuries association

(Registered charity)

A support group offering help and assistance to parents and relatives of those having suffered a head injury. The Surrey Support Group aims to give support and counselling. The day centre provides therapy programmes and support for those with head injuries.

Headway House

North Road

Guildford GU2 9PU

Telephone: 01483 455225

Helpline: 01483 454433

www.headway.org.uk

HOME START

(Registered charity)

This is a voluntary home visiting scheme offering friendship and support to young families under stress in their own homes, helping to prevent family crisis and breakdown.

Ash and Guilford 01253 810033

Elmbridge 020 8224 9777

Epsom, Ewell and Banstead

01737 379904

Farnham 01252 737453

Redhill, Reigate and Horley

01737 225908

Runnymede 01932 568874

Spelthorne 01932 232082

Surrey Heath 01276 681121

Woking 01483 740367

www.homestart.org.uk

The Hyperactive Children's Support Group

(Registered charity)

Aim of Group - to listen and talk to parents of hyperactive children and give advice and support when parents are following instructions sent to them from the society. Monthly clinics/workshops are held in Wimbledon.

Telephone: 01243 551313

(Mon-Fri 10-1pm)

Fax: 01243 552019

www.hacsg.org.uk

IN TOUCH

See Birth Defects Foundation.

JENNIFER TRUST FOR SPINAL MUSCULAR ATROPHY

(Registered charity)

Aim of group – to provide information and support for people suffering from spinal muscular atrophy and their families.

Elta House

Birmingham Road

Stratford upon Avon CU37 0QA

Telephone: 01789 267520

Helpline: 0800 975 3100 (families only)

www.stsma.org.uk

Jewish Care

(Registered charity)

The South London Jewish Family Service provides services to a number of client groups including visually impaired, physically disabled and their families and any other person in need of social work help. Contact:

c/o Stuart Young House

221 Golders Green Road

London NW11 9DQ

Telephone: 020 8992 2000

Fax: 020 8992 1998

Lady Hoare Trust for Physically Disabled Children

(Registered charity)

Gives practical and some financial help to children who are physically disabled by arthritis or limb problems. They have a network of trained social workers who visit families. Contact:

Lady Hoare Trust

1st Floor

89 Albert Embankment

London SE1 7TP

Telephone: 020 7820 9989

www.ladyhoaretrust.org.uk

LOOK

(Registered charity)

Offers help and support to children and young people with serious sight problems, and their families.

Queen Alexandra College

49 Court Oak Road

Birmingham B17 9TG

Telephone: 0121 428 5038

www.look-uk.org

MENCAP – Understanding learning disability.

(Registered charity)

The leading UK charity working with children and adults with a learning disability. They offer free, confidential and independent information and advice on virtually any subject to do with learning disability, for example:

Mencap has a lot of local knowledge, and a network of connections nationwide. This means we can link you up with organisations or services in your area that can help.

Learning Disability Helpline

123 Golden Lane

London EC1Y 0RT

Freephone: 0808 808 1111

Minicom: 0808 808 8181

www.mencap.org.uk/helpline

Muscular Dystrophy Campaign

(Registered charity)

Provides emotional and practical support through family care officers.

Audrey Begent

Department of Paediatrics

Hammersmith Hospital

Du Cane Road W12 0HS

Telephone: 020 8383 2484

(Family care officer)

or 02077208055

www.muscular-dystrophy.org

Metabolic Diseases in Children

See CLIMB

National Asthma Campaign

(Registered charity)

Aim of Group - To give support and information for people with asthma and their families through the Asthma Helpline.

Telephone: 0845 701 0203

(Mon – Fri 9am – 7pm)

www.asthma.org.uk

National Autistic Society

(Registered charity)

The National Autistic Society runs an autism helpline for parents, carers and people with autistic spectrum disorders.

Telephone: 0870 600 8585

(weekdays 10am - 4pm).

www.nas.org.uk

Surrey NAS

Sara Truman

Telephone: 01483 822630

e-mail: nassurrey@hotmail.com

www.mugsy.org

Also see SWAPS –factsheet 6

National Eczema Society

(Registered charity)

The aim of the group is to provide advice and support to eczema sufferers and their families. Informal get-togethers are arranged so those members can meet and exchange ideas and information.

The Society organises holidays for children and teenagers, that can offer independence under supervision, as well as giving a well-earned break to their families.

Telephone: 0870 241 3604

www.eczema.org

Parentline

(Registered charity)

Offers support to anyone parenting a child, parents, stepparents, grandparents and foster parents. Freephone helpline, courses, projects and information.

TELEPHONE: 0808 800 2222

www.parentline.co.uk

Parent Support Group for Mid Surrey

This is an independent parent led group with professional training and support work in Mid Surrey. All it's members have children with special needs and offer understanding and compassionate contact to other parents of children with special needs on a one to one basis.

For information contact:

Telephone: 01737 737818

Parent To Parent Information On Adoption Services (PPIAS)

See Adoption UK

PEP - Parents Encouraging Parents

PEP is a group that operates for the benefit of parents of children with a disability (of all types) whatever the age of the child. PEP is organised for parents by parents. Monthly newsletter and regular meetings are held. For further information contact:

Telephone: 01276 64520

Respite UK IIp

A respite service tailored to individual need (in your own home). Trips and outings. Holiday clubs for children with special needs and their siblings.

Telephone: 01932 886048

14 Marsh Lane

Addlestone

KT15 1UL

Rett Syndrome Association UK

(Registered charity)

Aim of Group – to offer telephone support 7 days a week, has diagnostic, therapy and management clinics for families and publishes a quarterly newsletter.

Telephone: 0870 770 3266

www.rettsyndrome.org.uk

RNIB - Royal National Institute for the Blind

(Registered charity)

RNIB offers a wide range of services for blind and partially sighted children and

young people. They can give you advice and supply equipment, information on the availability of books, magazines and leaflets, available in print, braille and on tape. Contact:

RNIB

105 Judd Street

London WC1H 9NE

Telephone: 020 7388 1266

www.rnib.org.uk

SCOPE (formerly Spastics Society)

(Registered charity)

Scope is a national disability organisation whose focus is people with cerebral palsy. Our aim is that disabled people achieve equality. Scope provides both national and local information and support services. Our work is focused around four priority areas – early years, employment, education and daily living.

For more information about cerebral palsy and Scope services, contact the Cerebral Palsy Helpline, which provides free information, advice and initial counselling. Open 9am – 9pm weekdays and 2pm – 6pm at weekends and Bank Holidays

Helpline: 0808 800 3333

www.scope.org.uk

email: cphelpline@scope.org.uk

Fax: 01908 321051

SNAPS (Special Needs & Parent Support)

This support group meets at Frimley Children's Centre. For more details contact:

Telephone: 01483 782937

SUN - Surrey Users Network

Surrey Users Network is a user lead organisation, which exists to promote the empowerment of users of Community Care and Children's Services. A committee made up of service users runs it.

SUN's Aims and Objectives:

For more information contact:

Surrey Users Network

Astolat

New Inn Lane

Guildford GU4 7HL

Telephone: 01483 456558

Surrey Community Action

(formerly Surrey Voluntary Service Council)

Offers advice on setting up good neighbour and care groups. These provide valuable help and assistance to a great many people throughout Surrey, including transport to anyone in their area who would otherwise be in difficulty. For further information contact:

Telephone: 01483 566072

Surrey Deaf Children's Society

(Registered charity)

The Surrey Deaf Children's Society offers support and information to families of deaf children. Parents can be put in touch with each other. Through fund raising they can offer financial assistance to some parents. Quarterly magazine TALK available to members.

Contact:

Telephone: 01932 402569

(Uniphone and fax)

SWAPS

(National Autistic Society – Kingston)

Support group for parents of children with Autism and Aspergers Syndrome, meets every second Tuesday each month at 8pm. Discussions, speakers, videos - also social events organised for children and their families. For more information contact:

Diane Lacey

Telephone: 020 8241 4745

e-mail: dianelacey@blueyonder.co.uk

The Children’s Trust - Tadworth

See Section 3 Factsheet 1

Tuberous Sclerosis Association

(Registered charity)

Aim of Group - A self-help group offering support, advice and information to Tuberous Sclerosis sufferers and their families. Leaflets about Tuberous Sclerosis and associated topics are available.

Contact:

PO Box 9644

Bromsgrove B61 0FP

Telephone: 01527 871898

Or: 01372457435

www.tuberous-sclerosis.org

Vision Aid

(Registered charity)

Vision Aid is a national organisation offering practical help and advice to the families of children with sight difficulties. Started by parents for parents, they offer friendship and support to families who may be feeling confused or isolated, caring for a child with special needs.

For more details contact:

Vision Aid

106 Junction Road

Deane

Bolton BL3 4NE

TELEPHONE: 01204 64265

Go To Top Of Page

Action For Carers Surrey

Registered charity)

Is led by carers, run by an executive committee of carers and supported by professionals from Health, Social Care and the voluntary sector.

Action for Carers (Surrey) aims to:

For further information contact:

County Carers Co-ordinator

Action for Carers (Surrey)

Astolat

Conier’s Way, New Inn Lane

Burpham, Guildford

GU4 7HL

Telephone: 01483 302748

Local Carers Support

Groups operate throughout Surrey to provide a focal point for support and information on services in your area. Many groups have a Support Worker to assist Young Carers. They will also act as advocates and accompany you to meetings, conferences, etc. In addition to raising local awareness of disability issues, they run workshops and local support groups. For further information contact:

East Surrey Carers Support Association (Redhill, Reigate, Horley and Tandridge)

Telephone: 01883 347900

Carers Support (Elmbridge)

Telephone: 01932 226064

Carers of Epsom (Epsom & Ewell)

Telephone: 01372 722269

Carers Support Guildford

Telephone: 01483 458123

Mole Valley Carers Support Project

Telephone: 01306 640020

Carers Development Runnymede

Telephone: 01932 722080

Carers Support Spelthorne

Telephone: 01784 444233

Surrey Heath Carers Support

Telephone: 01276 27390

Waverley Carers Development Worker

Telephone: 01252 718166

Carers Support Woking

Telephone: 01483 355500

Young Carers-

Young carers help to look after someone who has a disability or long term illness, this may be a physical disability, learning disability or mental health problem.

Surrey Young Carers Project offer someone to talk to, information and advice, a chance to get to know others and a chance to have a break and have some fun.

For further information contact:

Surrey Young Carer's Project

Telephone:

East Surrey: 01737 248111

West Surrey: 01483 568269

www.surrey-youngcarers.org.uk

Mid Surrey Project for Young Carers

Telephone: 01372 363618

Action for Carers and Employment

(Registered charity)

Aim to offer carers the opportunity to explore their training and/or employment opportunities. For further information contact:

Telephone:

West Surrey: 01483 565874

East Surrey: 01737 244220

Carersnet

Is a website for carers and providers of health and social services, voluntary organisations and the business sector. The site has been developed by Action for Carers Surrey and carers are involved in the planning and maintenance of the site.

www.carersnet.org.uk

www.surrey-youngcarers.org.uk

National Carers Organisations

Carers UK

Telephone: 020 7490 8818

www.carersonline.org.uk

Princess Royal Trust for Carers

(Registered charity)

Telephone: 020 7480 7788

www.carers.org

Go To Top Of Page

Air Travel

The British Airports publish leaflets "Who Looks After You at "......Airport". The BAA advises you to inform the airline and tour operator if you are travelling with a severely disabled person so that suitable arrangements can be made.

Contact numbers for local airports:

Gatwick Telephone: 08700 002468

Heathrow Telephone: 08700 000123

Luton Telephone: 01582 405100

Stanstead Telephone: 08700 000303

Bus and Coach Travel

For all information on bus and coach services including Access Buses contact:

Traveline

Telephone: 0870 608 2 608

(Daily 7am-10pm)

Minicom: 0870 241 2 216

www.traveline.org.uk

Other Bus Operators:

ARRIVA (Surrey area)

Telephone: 0870 1201 088

National Express

Telephone: 0870 580 80 80

Buses adapted for wheelchair users are operated by Transport for London. Contact:

Transport for London

Access & Mobility

Telephone: 020 7941 4600

Travel information

Telephone: 020 7222 1234

www.londontransport.co.uk

Bus and Train Guide

Copies of the 'Bus and Train Guide' published by Surrey County Council, are available from local libraries and council offices.

Car Travel

The Mobility Advice and Vehicle Information Service of the Department of Transport provides practical advice on driving, car adaptations and car choice, both for disabled drivers and passengers. Contact:

MAVIS

‘O’ Wing, Macadam Avenue

Old Wokingham Road

Crowthorne

Berkshire RG45 6XD

Telephone: 01344 661000

Fax: 01344 661066

www.dft.gov.uk

Community Transport

Surrey Community Action and Surrey County Council produce a regularly updated booklet; The Community Transport Directory

This excellent brochure contains details of all known voluntary sector car and minibus schemes, transport initiatives, Dial-A-Ride services, Taxis, Post Buses, etc. To obtain a copy contact:

Telephone: 01483 566072

Or:

Surrey County Council,

Community Transport Officer

Telephone: 020 8541 9395

Rail Travel

To enjoy a comfortable train journey, the rail operators suggest you make an advance booking if your child has difficulty getting around or uses a wheelchair (minimum 48 hours, preferable one-week's notice). They are happy to meet any special arrangements or provide assistance from Rail Staff at any stage of your journey. The service is free, full details are given in the British Rail leaflet "British Rail and Disabled Travellers" that can be obtained from your local Station. To discuss travel arrangements you need to contact the appropriate operator.

National Rail Enquiries (24hours) Telephone: 08457 48 49 50

Traveline

Telephone:0870 608 2 608

South West Trains

Telephone: 0845 6000 650

Assisted travel: 0845 605 0440

Minicom: 0845 6 05 04 41

www.swtrains.co.uk

South Central Trains

Telephone: 0870 830 6000

Minicom: (01233) 617621

www.southcentraltrains.co.uk

London Underground

Telephone: 0845 330 9880

Thames Trains

Telephone:0845 330 7182

www.thamestrains.co.uk

Royal Association for Disability and Rehabilitation (RADAR)

(Registered charity)

The UK’s campaigning and advisory disability body, run by and for disabled people.

Toilet Facilities - National Key Scheme

Keys can be obtained from RADAR together with a list of toilets fitted with the National Key Scheme locks throughout the United Kingdom.

Door To Door

Is a guide to transport for disabled people and may be purchased from RADAR.

RADAR

12 City Forum

250 City Road

London EC1V 8AF

Telephone: 020 7250 3222

Minicom: 020 7250 4119

www.radar.org.uk

Services for Blue (formerly orange) Badge Holders

For all information for Blue Badge holders including parking facilities in towns and cities across the UK, sources of equipment, insurance companies and a route planner service contact:

DfT Mobility and Inclusion Unit

Zone 1/18 Great Minster House

76 Marstham Street

London SW1P 4DR

Telephone: 020 7944 2914

www.dft.gov.uk

Go To Top Of Page

holidays

Holidays and Holiday Advice

A number of voluntary organisations arrange and assist with holidays for people with disability. Children’s Services does not normally subsidise holidays but if you require financial help towards your holiday, it may be possible for you to apply to voluntary organisations such as the Family Fund. (see Section 5 factsheet 5).

Ability UK (formerly Stackpole

Trust)

(Registered charity)

Provides active holidays, field studies and leisure time occupation for the disabled, chronically sick and their families. For more details:

Telephone: 020 7724 0473

www.ability-uk.org

Break

(Registered charity)

Has two holiday centres. Holiday provision for disabled children and adults, individually or as groups, with or without parents. Contact:

Telephone: 01263 822161

www.break-charity.org

Calvert Trust

(Registered charity)

Provides purpose built centres for

disabled people and families.

Contact

Exmoor Centre

Telephone: 01598 763221

Keilder Centre

Telephone: 01434 250232

Keswick Centre

Telephone: 01768 772254

www.calvert-trust.org.uk

Can be Done

Tour operator for wheelchair users.

See RADAR

Happy Days Children’s Charity

(Registered charity)

Organise holidays and day trips for children with special needs. Contact:

Byron House

43 Cardiff Road

Luton LU1 1PP

Telephone: 01582 755999

Or: 0870 7700 324

Help

Low cost holidays for lone parents and children. Needy families may be sponsored. Contact:

Telephone: 01302 728791

Holiday Care Service

Can provide information on accommodation, transport, publications and guides, inclusive holidays, holidays in the UK and abroad and possible sources of financial help. Contact:

2nd Floor, Imperial Buildings

Victoria Road,

Horley RH6 7PZ

Telephone: 08451 249 971

RADAR

(Royal Association for Disability and Rehabilitation - Registered charity)

Produces holiday guides and fact sheets including information on activity holidays and help with finance.

Telephone: 020 7250 3222

Minicom: 020 7250 4119

www.radar.org.uk

Royal National Institute for the Blind

(Registered charity)

Offer a holiday service. Contact:

Telephone: 020 8388 1266

www.rnib.org.uk

Scout Holiday Homes Trust

Provides inexpensive self-catering holidays at a variety of holiday camps for any family with a disabled member. For more information contact:

Telephone: 0845 300 1818 (general)

Telephone: 020 8433 7290 (holidays)

The Lifetrain Trust (formerly Surrey PHAB)

(Registered charity)

Offer holidays for children and young people. Contact:

Felbury House

Holmbury St Mary

Dorking

RH5 6NL

Telephone: 01306 730929

Special Treats

In exceptional circumstances, families may look for a special treat for their child. The following organisations may be able to help in these cases. Contact:

Make A Wish Foundation UK

(Registered charity)

329-331 London Road

Camberley GU15 3HQ

Telephone: 01276 24127

Fax: 01276 683727

www.make-a-wish.org.uk

Starlight Children’s Foundation

(Registered charity)

Macmillan House

Paddington Station

Paddington W2 1HD

Telephone: 020 7262 2881

Fax: 020 7402 7403

Email: info@starlight.org.uk

www.starlight.org.uk

The National Holiday Fund for

Sick & Disabled Children

(Registered charity)

Suite 1, Princess House

1-2 Princess Parade

New Road

Dagenham

Essex RM10 9LS

Telephone: 020 8595 9624

www.nhfcharity.co.uk

Activities a - m

Asteroids – White Lodge Centre

(Registered charity)

A holiday club for children who have learning disabilities aged from 9-12 years.

Thursdays 10am-12pm at White Lodge. Centre, Chertsey.

TELEPHONE: 01932 567131

CAT - Children's Activity & Therapy

CAT is a voluntary organisation, based in the Woking area that aims to help children with special needs to gain confidence and enjoy life through sporting and leisure activities. The group is for children aged from four years and with a variety of disabilities. Both the group and activities are organised by the parents. Activities include swimming, trampolining, and occupational therapy. There is also a parent support group.

Telephone: 01483 714629

Comets – White Lodge Centre

(Registered charity)

A holiday club for children who have learning disabilities aged from 5-8 years.

Tuesdays 10am-3.30pm at White Lodge Centre, Chertsey.

TELEPHONE: 01932 567131

Disability Challengers

(Registered charity)

Provides leisure opportunities for disabled children and young people. We provide stimulation, challenge and loads of fun at each of our Challenger’s Centres,

For children under 13 we offer a variety of activities, including a large soft play area, painting, music and a multitude of toys. The large playstructure, paddling pool, bikes and other toy vehicles offer lots of outdoor enjoyment.

Guilford Challengers also boasts an exciting Multi-Sensory Suite which uses light, sound and ‘feel’ to provide relaxation, stimulation and fun for children with profound impairments.

Our Youth Group for young people from the age of 13, meets every Saturday and

Thursday evening during term time, and includes additional days during school holidays. Our itineraries are wide ranging and include outings to night clubs, the cinema, bowling, sports clubs, pub lunches, theme parks and much more. All these activities aid the development of social skills to help with the transition to adult life.

Challenger’s Leisure Development Project works across Mid and West Surrey promoting the inclusion of disabled children into ‘mainstream’ leisure services. Our enthusiastic team of Leisure Development Officers are committed to increasing awareness and choice for disabled young people by facilitating and supporting local organisations and leisure providers. A wide and varied range of activities are run throughout the year, increasing during school holidays.

Challengers

Stoke Park

London Road

Guildford GU1 1TU

Telephone: 01483 579390

www.disability-challengers.org

Duke of Edinburgh Award

(Registered charity)

The Duke of Edinburgh Award works on individual skills, service to the community and an outdoor challenge. The award welcomes participants with disabilities and has their own special needs co-ordinator. For more information:

The D of E Award – South East

Telephone: 01932 564788

www.theaward.org

Surrey –Telephone: 01932 570329

Gateway Clubs

Affiliated to Mencap these aim to advance personal development of people with learning disabilities. These clubs cover a wide range of abilities and ages but are mostly for 14 &16+.

Telephone: 01622 674222

Girlguiding London & South East

(Registered charity)

Rainbow, Brownie, Guide and Ranger Units - the aim of Guiding is to help girls and young women develop emotionally, mentally, physically and spiritually to make a positive contribution to their community. Each Guide County has an adviser to help find a suitable Unit for your child; they will also provide leaders with information on disability. To find out more about your local group contact:

Girlguiding London & South East

3 Jaggard Way

Wandsworth Common

London SW12 8SG

Telephone: 020 8675 7572

www.girlguiding.org.uk

Lifetrain Trust (formerly Surrey PHAB)

(Registered charity)

Aims to integrate people with and without physical disabilities. The Clubs are aimed at individuals who want to participate in the social and sporting events, who feel they could contribute to the Club and who would get something out of the Club.

For details of your local club contact:

Telephone: 01306 730929

Little Stars – White Lodge Centre

(Registered charity)

A baby and toddler group for parents/carers and children with special needs, from birth to 4 years. Runs during term time 9.30am-1pm on Tuesdays at White Lodge Centre, Chertsey.

TELEPHONE: 01932 567131

Mencap Leisure Development Project

(Registered charity)

Promotes and develops choice based leisure opportunities for people with learning disabilities across Surrey.

Leisure Development

Mencap, 13a Nutley Lane

Reigate RH2 9HP

Telephone: 01737 225902

www.mencap.org.uk/surrey

Orpheus Centre

Performing Arts and Life Skills

(Registered charity)

The Orpheus Centre was formed to support disabled young people wishing to develop an interest in music and drama. The Orpheus Centre in Godstone is thought to be the finest residential arts facility for disabled people in the country. There is a theatre, recording studio, rehearsal space, swimming pool, etc. It offers 3, 5, 6 & 7-day courses in a wide variety of subjects. For more information contact the centre at:

North Park Lane

Godstone RH9 8ND

Telephone: 01883 744664

www.orpheus.org.uk

email: enquiries@orpheus.org.uk

Riding for the

Disabled Association

(Registered charity)

Riding or driving lessons for children with all types of disabilities are available at centres throughout the county.

For information on your nearest centre contact:

Mrs Judi Singer

Swallow Cottage

Thorncombe Street

Nr Bramley GU5 0LZ

Telephone and Fax: 01483 208417

Or:

Riding for the Disabled Association

Lavinia Norfolk House

Avenue Road

Stoneleigh Park

CV8 2LY

Telephone: 024 7669 6570

www.riding-for-disabled.org.uk

RYA Sailability

(Registered charity)

The national charity for disabled sailing. A Charity created to co-ordinate and develop boating opportunities for anyone with disabilities in the UK. Various sailing clubs in the area offer sailing to young people with disabilities, including Frensham Ponds, Littleton, Papercourt, Queen Mary and Thames Young Mariners. For more information please contact:

RYA Sailability

RYA House

Romsey Road

Eastleigh SO50 9YA

Telephone: 0845 345 0403

Fax: 02380 627481

www.rya.org.uk/sailability

Email: info@ryasailability.org

Scout Association

(Registered charity)

Beavers, Cubs, Scouts and Explorer Scouts and Scout Network - for young people aged 6 to 25 years. The Scouting Association has a policy of integrating young people with special needs.

For further information contact:

The Scout Association - Special Needs

Gilwell Park

Bury Road

Chingford E4 7QW

Telephone: 0845 300 1818

www.scoutbase.org.uk

T’winks ,- White Lodge Centre

(Registered charity)

T’winks is a specialist holiday club for up to 6 children who are autistic, aged 5 to 9 years, whose behaviour can at times be challenging and who would benefit from a specialist environment

It is run Monday / Wednesday / Friday during school holidays and provides a wide range of play activities. For more information contact:

THE PLAY AND LEISURE STAFF

WHITE LODGE CENTRE

HOLLOWAY HILL

CHERTSEY KT16 0AE

TELEPHONE: 01932 567131

Tumble Tots

Under the close supervision of trained staff, using specially constructed and designed Tumble Tots play equipment, children are encouraged to climb, hang, catch, slide, bounce, jump, balance and somersault in a 45-minute session. Classes are for crawling-walking, walking-2, 2-3, 4-41/2, 41/2-7 years.

GUILDFORD, GODALMING, CRANLEIGH, HASLEMERE AND SHAMLEY GREEN

TELEPHONE: 01483 420741

FARNHAM, CAMBERLEY AND MYTCHETT

TELEPHONE: 01276 62438

REDHILL AND REIGATE

TELEPHONE: 01273 330125

DORKING, LEATHERHEAD AND WOKING

TELEPHONE: 01372 273649

EPSOM, CHEAM AND BANSTEAD

TELEPHONE: 01737 352375

ADDLESTONE, WEYBRIDGE, SUNBURY BYFLEET AND MOLESEY

TELEPHONE: 01932 564512

White Lodge Centre

(Registered charity)

White Lodge is a resource which seeks to support disabled children, adults and their families/carers in the Surrey area, by providing a range of flexible and integrated services.

For further information:

PLAY AND LEISURE STAFF

WHITE LODGE CENTRE

HOLLOWAY HILL

CHERTSEY KT16 0AE

TELEPHONE:01932 567131

Woking Leisure Centre and Pool in the Park

Operated by Woking Borough Council we offer a varied assortment of leisure opportunities for all, in order to promote health and well being in a friendly and easily accessible environment. Both buildings have entrance ramps, lifts to all floors, disabled changing areas and the pools have a hoist to aid access.

Additional facilities include:

Woking Leisure Centre

An array of innovative equipment designed to stimulate or relax your senses. Features include: Spectacular lighting effects including ultra-violet; bubble tubes; heated water bed; infinity tunnel; fibre optics; multi-coloured ceiling; tactile panels; touch wall; smoke machine.

basketball, football, short mat bowls, badminton, table tennis, short tennis, skittles, unihoc, trampolining. Plus term-time Sports Courses programme.

Children’s holiday activities, children’s parties.

Pool in the Park

For further information:

WOKING LEISURE CENTRE AND POOL IN THE PARK

WOKING PARK

KINGFIELD ROAD

WOKING GU22 9BA

TELEPHONE: 01483 771122

WWW.WOKING.GOV.UK

YMCA

The YMCA provides high quality multi-activity holiday fun at Easter and Summer Day Camps, where children can experience a variety of activities and enjoy the excitement of new challenges, as well as being introduced to the Christian faith. All team members are carefully selected and include Christians and non-Christians drawn from various professions and walks of life. Some are paid YMCA staff and others are volunteers. All are given specific training to supervise the activities, which include: BMX biking, arts and crafts, woodland assault course, archery, rope climbing.

For further information contact:

Miss Lisa Scott

Guilford YMCA

Telephone: 01483 532555

www.guilfordymca.org.uk

Mr Tom Bland

Reigate & Redhill YMCA

Telephone: 01737 779979

WWW.YMCA.ORG.UK

Fun days out

BIRD PARKS, ZOOS AND FARMS

Birdworld

Birdworld is the largest Bird Park in the UK. It is open most of the year from 9.30am-6pm in summer, 3.30pm in winter. It is a lovely day out for any age group and is suitable for wheelchair users. In addition to its many attractions there are also daily events such as Penguin Feeding, Heron Theatre and Meet the Babies, etc.

For more information contact:

Birdworld, Holt Pound

Farnham GU10 4LD

Information Line

Telephone: 01420 22838

Brocketts Farm Park

A working farm featuring many different varieties of animals including rare breeds. Located at Young Street, Fetcham. It is open all year from 10am-6pm.

For further details please contact:

Telephone: 01372 363764

Chapel Farm Animal Trail

The farm is set in 200 acres of farmland, children can meet and pet the animals. It is open from February to late October from 10am-6pm, last admission 5pm. Located at Chapel Lane, West Humble, Dorking.

For further information contact:

Telephone: 01306 882865

Colchester Zoo

Colchester Zoo has gained the reputation as one of the best zoos in Europe with over 170 species, many part of the international breeding programmes. 'Spirit of Africa' - Elephant Kingdom is their most spectacular project. Facilities are available for people with disabilities but the zoo is naturally hilly and pushing wheelchairs can be hard going. There is an easier route available and prices are discounted for the disabled. Open daily from 9.30am to one hour before dusk. Contact:

Colchester Zoo

Maldon Road

Stanway

Colchester CO3 5SL

Telephone: 01206 331292

Drusillas Park (No Ordinary Zoo)

Drusillas is open every day of the year except Christmas Eve, Christmas Day and Boxing Day. Summer opening is from 10am with last admission at 5pm. Winter opening is from 10am with last admission at 4pm. The park is fully accessible to wheelchair visitors and there is a Sensory Trail.

For up to the minute information contact:

Drusillas Park

Alfriston

East Sussex

Telephone: 01323 874100

Godstone Farm

Located at Tilburstow Hill Road, Godstone there is lots to see and do for all the family. Open 10am-6pm, 7 days a week from February to October and weekends at other times.

For more details contact:

Telephone: 01883 742546

Horton Park Children's Farm

Features many different breeds of animals for children to touch and enjoy including lambs, goats, ponies, rabbits, ducks and geese. Located in Horton Lane, Epsom.

For further details please contact:

Telephone: 01372 743984

London Butterfly House

Tropical greenhouse gardens with live butterflies from all over the world. Also displays of insects under glass, including spiders, scorpions and locusts. Situated in the grounds of Syon House, Brentford. For further details please contact:

Telephone: 020 8560 7272

Or: 020 8560 0378

RAILWAYS

Bluebell Railway

The Bluebell Railway can be accessed at a number of stations; probably the best place to join is at Sheffield Park Station, East Sussex. For train timetable, special events, etc.

Telephone: 01825 722008

Romney, Hythe & Dymchurch Railway

The line runs for nearly 14 miles from Hythe to the lighthouses at Dungeness Point. This tourist mainline railway was built for a millionaire racing driver in the 1920's with all the locomotives and carriages just one third full size. For train timetable, special events, etc.

Telephone: 01797 362353

THEME PARKS

Chessington World of Adventures

Chessington W.O.A. is open 7 days a week from 10am-5.15pm, last admission is 3pm, closing later for Summer Nights and Family Friday Nights. The centre is normally open from mid March to the end of October. A specially designed leaflet is available for disabled visitors.

For further details contact:

Chessington World of Adventures

Chessington KT9 2NE

Telephone: 0870 444 7777

www.chessington.com

Legoland Windsor

Legoland is suitable for children from 2 to 12 years. It is open every day from mid March to the beginning of November from 10am-6pm (or dusk). The facilities are excellent for children with disabilities. An advisory leaflet is available either in advance or on arrival at guest services. For further details contact:

Legoland Windsor Park Ltd

Windsor SL4 4AY

Information and Bookings Hotline

Telephone: 0870 504 0404

www.legoland.co.uk

Thorpe Park

Thorpe Park is open daily from mid March to the end of October and offers a wide range of activities to children of all ages. Assistance is offered on major rides by using the telephones provided. Disabled guide to Thorpe Park is also available. For more information contact:

Great Thorpe Park,

Staines Road

Chertsey KT16 8PN

24 Hour Visitor Hotline: 0870 444 4466

www.thorpepark.com

section 4 - factsheet 7

ACTIVITIES AVAILABLE IN NORTH SURREY

Also see Section 4, Factsheets 3 - 5 (Leisure Activities A-Z)

Bright Lights Club

Bright Lights is a club for children aged between 5 and 12 years with special needs, who live in Runnymede. It is held on Thursday evening 6-8pm (during term time) and meets at Egham Sports Centre, Egham.

For more information contact:

Sam Jackson

Telephone: 01784 434135

Chertsey Youth Centre

Open Monday 7.30pm to 9.30pm, Tuesday 7pm to 9pm and Friday 7.30pm to 9.30pm. For more information contact:

Chertsey Youth Centre

Chertsey Road

Addlestone

Telephone: 01932 562523

Deaf Club - Spelthorne

Deaf Club for children aged 7 to 14. For details contact:

Heston Community Centre

New Heston Road,

Heston,

Hounslow

Telephone: 020 8570 5076

(Mon 2-4, Wed 10-12)

Egham Rugby Club

Indoor wheelchair rugby played.

For further information contact:

Telephone: 01784 432983

Egham Shotokan Karate Club

Welcomes enquire from disabled participants and spectators. Contact:

Mr Roy Eve

119 Larksfield

Englefield Green

Egham KT20 OPA

Telephone: 01784 438302

Egham Youth Centre

Open Mondays 7.30-9.45pm, Thursdays 7.30-9.45pm, for 12 to 18's. Contact:

Youth Worker in Charge

Egham Youth Centre

185 High Street

Egham TW20 9DY

Telephone: 01784 434710

Saturday Club

Youth club for 12 to 19's with a learning disability who live in Runnymede and Spelthorne. The club meets once a month at Egham Youth Centre.

For information: see Tuesday Club

Tuesday Club

Youth Club for 12 to 19 year olds with learning disabilities that live in Runnymede and Spelthorne. Meets Tuesday 6.30pm to 8.30pm at Egham Youth Centre.

For further information on both clubs contact:

Egham Youth Centre

185 High Street

Egham TW20 9DY

Telephone: 01784 434710

Englefield Green Youth Centre

For details of clubs and times contact:

Englefield Green Youth Centre

Corby Drive

Englefield Green

Telephone: 01784 439451

(Wed & Thurs 10-1pm)

Link Leisure

Link leisure is a charity providing sports and leisure to people with disabilities who live in Woking and Surrey Heath.

After school clubs - for children include swimming lessons, horse riding, football training, junior sports club (including trampolining), play and family fun sessions. One to one support is available if needed for these activities.

Youth clubs - Link Leisure run two clubs, one in Woking and one in Surrey Heath.

Link Leisure Playscheme – A school holiday playscheme for children aged 3-19 with learning disabilities and special needs.

For further information:

New Horizons

4a Board school Road

Woking GU21 5HE

Telephone: 01483 770037

Littleton Phabsail

Teaches sailing to people with disabilities at the Littleton Sailing Club in Shepperton.

Contact:

Roger Crews

171 Woodham Lane

New Haw

Addlestone KT15 3NN

Telephone: 01932 352365

M.A.S.C

An after school club for children with special needs aged from 5-12 years and living in the Borough of Spelthorne. Based at Manor Mead School, Shepperton.

Thursdays 3.30-5.20pm during term time.

Telephone: 01932 567131

White Lodge Centre

SHAKERS

A youth group for young people with learning disabilities living in the Borough of Runnymede aged from 13-19 years.

Based atSt Paul’s Church Hall, School Lane, Addlestone.

On the last Saturday of the month for 10 months, and Mon-Fri for the first 2 weeks of the summer holidays, from 10am-3.30.

Telephone: 01932 567131

White Lodge Centre

Section 4 - factsheet 8

sports & recreation

Also see Section 4, Factsheets 3 - 5 (Leisure Activities A-Z)

Borough Council Leisure/Sports Development Officer

Your local borough council will be able to advise you about leisure and sport opportunities in your area.

For further information contact:

Runnymede Borough Council

Telephone: 01932 838383

www.runnymede.gov.uk

Spelthorne Borough Council

Telephone: 01784 451499

www.spelthorne.gov.uk

Woking Borough Council

Telephone: 01483 755855

www.woking.gov.uk

Sports Centres & Swimming Pools

Most Sports/Leisure Centres and Swimming Pools have a range of activities for people with disabilities, often at a discounted price, for example: Woking offers a Disabled Persons Activity Pass to residents (the discounted prices also includes accompanying carers). For times and other details please contact:

Abbey Fit Sports Centre

School Lane

Addlestone

Telephone: 01932 858966

Egham Sports Centre

Vicarage Road

Egham

Telephone: 01784 437695

Elmbridge Leisure Centre

Waterside Drive

Walton on Thames

Telephone: 01932 243863

Spelthorne Leisure Centre

Knowle Green

Staines

Telephone: 01784 493493

Sunbury Leisure Centre

Nursery Road

Sunbury on Thames

Telephone: 01932 772287

Windsor Leisure Pool

Clewer Mead

Stovell Road

Windsor

Telephone: 01753 850004

Woking Leisure Centre and Pool in the Park

Kingfield Road

Woking GU22 9BA

Telephone: 01483 771122

www.woking.gov.uk

Theatres

Theatre Royal

Thames Street

Windsor

Telephone: 01753 853888

Yvonne Arnaud Theatre

Millbrook

Guildford

Telephone: 01483 440000

New Victoria Theatre/Rhoda McGraw Theatre

The Peacocks Centre

Woking

Telephone: 01483 761144

The Polka Theatre has regular signed performances, a hearing induction loop and is fully accessible to wheelchair users, we also provide touch tours of the stage on request. Workshops for groups of children with special needs can be arranged in drama, storytelling, mask and craft.

For more information contact:

Bryony Lawrence

Polka Theatre

240 The Broadway

Wimbledon SW19 1SB

Telephone: 020 8545 8320

Children's Challenge Groups

The Challenge Groups are for children aged between 2 and 5 years who have a special need in one of the following areas of their development: physical, intellectual, social, emotional, language. The emphasis is on fun and learning through play. Children must be resident in the Woking or North Surrey PCT Area. Referral to the group is made via the Child Assessment Service at White Lodge Centre and can be made by one of the following professionals:

Community paediatric team

Health Visitor - GP

Children’s Service –Social Care

Other appropriate professionals

The groups are:

Chertsey Children’s Challenge Group

Telephone: 01932 568359

Woking Children’s Challenge Group

Telephone: 01483 761919

Runnymede Holiday Project

For children aged 5 -11 years with disabilities who live in the Runnymede area. The scheme is held at White Lodge Centre from 10am to 3pm, 2 days a week in August plus other days. 15 places are available and there is a parental charge.

White Lodge Centre

Telephone: 01932 565767

Spelthorne Holiday Project

For children aged 5 -19 years with learning disabilities who live in the Spelthorne area. The scheme is held at Loyola Centre, Green Street, Sunbury and other venues from 10am to 3pm, Tuesday and Wednesday at Easter, Christmas, Spring Bank Holiday and Summer holidays. There are 25 places and costs £5 per day.

Contact:

Angela Considine

Telephone: 01932 788228

Also see Section 4, Factsheets 3 - 5 (Leisure Activities A-Z)

Fun With Music

One to one sessions for special needs children tailored to meet the individual.

Activities include singing songs and rhymes, playing singing and listening games and play with a wide variety of percussion instruments.

For details and prices contact:

Telephone: 01483 271175

Gateway Clubs

Affiliated to Mencap these aim to advance the personal development of people with learning disabilities. These clubs cover a wide range of abilities and ages but are mostly for 14 and 16+ years.

Telephone: 01622 674222

Guildford - Yomen

Meets Tuesday 7-9pm at St Francis Church Hall, Beckingham Road, Guildford. Contact:

Telephone: 01483 811702

Haslemere

Meets Friday 7.30-9.30pm at Shottermill Village Hall, Vicarage Lane, Shottermill, Haslemere and is open to 14+. Contact:

Telephone: 01428 652431

Horseriding Horsley & Bookham

Special needs session on Sunday's. Contact:

Telephone: 01372 453098

Leisure Development Officers

Disability Challengers employs leisure development officers to promote leisure opportunities for children with disabilities and support local organisations. For up to date information on new clubs, workshops and other initiatives in SW Surrey please contact:

Telephone: 01483 579390

Merry-go-Round Toy & Leisure Library

For children and young people with learning disabilities or other specific health needs.

Frimley Children’s centre

Church Road

Frimley GU16 5AD

Telephone: 01483 782936

OFLAC Club

Oflac is a club for young people with any special needs. It meets on Mondays 10am-4pm for indoor sports, cooking, arts & crafts, board games, music, etc. Alternate Wednesdays 8 - 10pm for social evenings, Friday Group-Drama 10 - 12noon, Art 1-4pm. Contact:

Oak Farm Leisure & Activities Club

Telephone: 01252 515045 (messages)

01252 547524 (home)

Skiing

The British Ski Club for disabled organises weekend sessions for disabled children and adults at Aldershot Artificial Ski Slopes.

For more information contact:

Telephone: 01252 325889

The Lifetrain Trust (formerly PHAB) –

Farnham Youth Project

Club meets Tuesday 7-10pm at Dogflud Way, Farnham for young people aged 14 -25 years. Contact:

Telephone: 01252 727087

Or 01420 23630

Guildford

Club meets Tuesday 6.45-9.30pm at Guildford Youth Centre for young people aged 14 - 25. Contact:

Telephone: 01483 575349

Tumble Tots

Under the close supervision of trained staff, using specially constructed and designed Tumble Tots play equipment, children are encouraged to climb, hang, catch, slide, bounce, jump, balance and somersault in a 45-minute session. Classes are for crawling-walking, walking-2 years, 2-3 years, 4-4½ years, 4½-7 years.

For sessions at Guildford, Godalming, Cranleigh, Haslemere and Shamley Green contact:

Telephone: 01483 420741

For sessions at Farnham, Camberley and Mytchett contact:

Telephone: 01276 62438

Youth Club - Liphook

This club is for young adult's aged between 12-25 with learning disabilities, meets on Wednesdays 7-8.30pm (term time only) in the Methodist Hall, Liphook.

SECTION 4 - FACTSHEET 10

leisure

SPORTS & RECREATION IN SOUTH WEST SURREY

Also see Section 4, Factsheets 3 - 5 (Leisure Activities A-Z)

Borough Council Leisure / Sports Development Officer

Your local borough council will be able to advise you about leisure and sport opportunities in your area.

For further information contact:

Guildford Borough Council

Telephone: 01483 505050

www.guildford.gov.uk

Surrey Heath Borough Council

Telephone: 01276 707100

www.surreyheath.gov.uk

Waverley Borough Council

Telephone: 01483 523333

www.waverley.gov.uk

Sports Centres & Swimming Pools

Most Sports/Leisure Centres and Swimming Pools have a range of activities for people with disabilities, often at a discounted price. For times and other details please contact:

Camberley Gymnastic Centre

Mitcham Road, Camberley

Cranleigh Leisure Centre

Cranleigh

Telephone: 01483 274400

Farnham Sports Centre

Dogflud Way, Farnham

Telephone: 01252 723208

Godalming Leisure Centre

Broadwater Park, Summer Road

Farncombe, Godalming

Telephone: 01483 417282

Guildford Spectrum Leisure Centre

Parkway, Guildford

Telephone: 01483 443322

Horsell Recreation Centre

Horsell Rise, Horsell

Telephone: 01483 715333

Gymnastics - Special Needs

Courses for children with physical and learning disabilities; held at Guildford Spectrum. Contact:

Telephone: 01483 443350

Or: 01483 443322

Rushmoor Mallard Sports Club

Activities for people with a disability.

Sunday 12.15-1.15pm

Swimming at Farnborough Recreation Centre

Friday 8-10pm sports (including archery)

Summer - Wednesday evenings, athletic training and rugby clubs. Contact:

Telephone: 01276 32681

Soft Play – Adventure Island

Exclusive use of the "Soft Play" area for children with special needs every Sunday from 5-6pm. £1 per child per session (siblings welcome). Contact:

Cranleigh Leisure Centre

Telephone: 01483 274400

Swimming - Cranleigh

Special needs swimming every Saturday from 5-6pm at Cranleigh Leisure Centre. £1 registration fee.

Contact:

Telephone: 01483 274400

Holiday Play Schemes

Also see Section 4 Factsheets 3-5

Guildford Polka Dot Playsheme

For children with Physical Disabilities and Learning Disabilities aged between 4 and 12 years that live in the Guildford area. The scheme is held at the United Reform Church, Portsmouth Road, 9.30am to 3pm during August for 25 children. There is a parental charge.

Contact:

Edna Osborne

Telephone: 01483 560025

Haslemere Busy Bees

For children aged 18 months to 16 years who have physical disability or learning disability and live in the Haslemere district. The scheme is held at Grayswood Village Hall for 1 week in summer plus outings at other times for 24 children. There is a parental charge. For more information speak to your social worker or:

Telephone: 01483 517777

Haslemere - Sunblazers VI

This holiday club is for children aged between 4-12 years of age, it is held in Shottermill Village Hall, Haslemere.

Link Leisure Playscheme

A school holiday playscheme for children aged 3-19 with learning disabilities and special needs who live in the Woking and Surrey Heath area.

For more information contact:

Link Leisure

Telephone: 01483 770037

Theatres

Yvonne Arnaud Theatre

Millbrook,Guildford

Telephone: 01483 440000

New Victoria Theatre/Rhoda McGraw Theatre

The Peacocks Centre, Woking

Telephone: 01483 761144

The Polka Theatre has regular signed performances, a hearing induction loop and is fully accessible to wheel chair users, we also provide touch tours of the stage on request. Workshops for groups of children with special needs can be arranged in drama, storytelling, mask and craft.

For further information contact:

Bryony Lawrence

Polka Theatre

240 The Broadway,

Wimbledon SW19 1SB

Telephone: 020 8545 8320

section 4 - factsheet 11

ACTIVITIES AVAILABLE IN EAST SURREY

Also see Section 4, Factsheets 3 - 5 (Leisure Activities A-Z)

Buddy Scheme (Mencap)

A playscheme worker supports a child with a learning disability in a playscheme environment. This scheme runs in partnership with Tandridge Leisure Services Ltd.

Telephone: 01737 225902

Drama Workshops

These integrated workshops meet every Saturday (children) and Sunday (teenagers) from 10am to 12 noon at Tandridge Leisure Pool, Oxted. They are aimed at any child or teenager interested in drama. Contact:

Telephone: 01342 824917

Funzone

Children with disabilities and their brothers and sisters can enjoy a wide range of soft play toys and bouncy castle at the YMCA at Redhill. The scheme is held on the last Saturday of every month from 2-4 pm. For more information contact:

Telephone: 01883 722399

Gateway Clubs

Affiliated to Mencap these clubs aim to advance the personal development of people with learning disabilities. These clubs cover a wide range of ages and abilities but are mostly for 14 or 16+ years.

Telephone: 01622 674222

Caterham - Tandem

Meets 1st and 3rd Tuesday of each month from 7.15-9.15pm at Caterham

Centre, Godstone Road, Caterham (no meetings in August).

For further information contact:

Telephone: 01883 347430

Horley Saturday and Tuesday Groups

Horley Saturday Playscheme

Meet every two weeks at the Keys Youth Centre,Court Lodge Road, Horley. This group is for children with a learning disability aged 5-11.

Horley Saturday Group

Meet on alternate Saturdays, for people with a learning disability aged 12-18.

Horley Tuesday Youth Group

Meets weekly and is for people with learning disabilities aged 13-18.

For further information:

Telephone: 01737 225902

Or: 01737 225368

Mencap Leisure Development

Mencap have a Leisure Development Manager based in East Surrey, who promotes and creates leisure opportunities for children and adults with learning disabilities.

For up to date information on leisure options contact:

Leisure Development Manager

Mencap

13a Nutley Lane

Reigate RH2 9HP

Telephone: 01737 225902

www.mencap.org.uk/surrey

Rangers Guild

The 1st Surrey East Disabled Rangers is for girls and women aged 14 to 25 years. They meet every Monday 7.30 to 9pm in Redhill for general guiding activities.

For more information contact:

Telephone: 01737 762277

Reigate & Banstead Borough Council – Leisure Services

Telephone: 01737 276119

www.reigate-banstead.gov.uk

Reigate & Redhill YMCA

Reigate and Redhill YMCA run a variety of activities for children and young adults.

For further information contact:

Reigate & Redhill YMCA

Princes Road

Redhill RH1 6JJ

Telephone: 01737 779979

Reigate Youth Group

This Club for teenager's aged between 13 and 19 years meets alternate Tuesday's at The Ellen Terry Centre, 9 Oak Road, Reigate from 7 to 9pm. The group arranges a variety of activities. The scheme is open to any teenager in East Surrey.

For more information contact:

Youth Club Co-ordinator

Telephone: 01737 225368

Share Music and The Orpheus Centre

'Share Music' is a residential course that runs for a few days during the summer in various venues around the UK. The music courses aim to give disabled and non-disabled people a chance to work together creating music and music theatre and ending with performing in front of an audience. The philosophies of the 'Share Music' course are now part of the Orpheus Centre in Godstone.

For more information contact:

The Orpheus Centre

North Park Lane

Godstone RH9 8ND

Telephone: 01883 744664

www.orpheus.org.uk

Woodcraft Folk

This group for children and families focuses on environmental issues and other fun activities including camping trips. The Woodcraft Folk are committed to equal opportunities and welcome all children. Contact:

Woodcraft Folk - Brockham

Telephone: 01737 843822

Youth Centres

Banstead

Telephone: 01737 359994

Horley

The Keys Youth & Community Centre

Telephone: 01293 431511

Merstham

The Oakley Youth Centre

Telephone: 01737 642019

Redhill Youth Centre

Telephone: 01737 764692

Redhill

St Nicholas Youth Centre

Telephone: 01883 742667

Tadworth

Phoenix Youth Centre

Telephone: 01737 358182

Woodhatch

Sovereign Youth & Community Centre

Telephone: 01737 247964

SECTION 4 - FACTSHEET 12

leisure

SPORTS & RECREATION IN EAST SURREY

Also see Section 4, Factsheets 3 - 5 (Leisure Activities A-Z)

Local Council Leisure / Sports Development Officer

Your local borough or district council will be able to advise you about leisure and sport opportunities in your area.

For further information contact:

Mole Valley District Council

Telephone: 01306 885001

www.molevalley.gov.uk

Reigate & Banstead Borough Council

Telephone: 01737 276127

Or: 01737 276000

www.reigate-banstead.gov.uk

Tandridge District Council

Telephone: 01883 722000

www.tandridge.gov.uk

Sports Centres & Swimming Pools

Most Sports/ Leisure Centres and Swimming Pools have a range of activities for people with disabilities, often at a discounted price. For times and other details please contact:

Banstead Sports Centre

Merland Rise

Tadworth

Telephone: 01737 361933

Caterham Leisure Centre

13 Godstone Road

Caterham

Telephone: 01883 348304

Donyngs Recreation Centre

Linkfield Lane

Redhill

Telephone: 01737 764732

Dorking Swimming & Sports Centre

Reigate Road

Dorking

Telephone: 01306 887722

Horley Anderson Centre

Thornton Close

Court Lodge Estate

Horley

Telephone: 01293 784075

Leatherhead Leisure Centre

Guildford Road

Leatherhead

Telephone: 01372 377674

Or: 01372 377737

Reigate & Redhill YMCA

Princes Road

Redhill

Telephone: 01737 779979

De Stafford Sports Centre

Caterham

Telephone: 01883 344355

Tandridge Leisure Pool

Hoskins Road

Oxted

Telephone: 01883 722811

Dorking Dolphins Club

Club meets every Friday from 8.30 to 10pm for children and adults. The club has use of both pools, has a wheelchair pool hoist and can give one-to-one assistance. For more details:

Telephone: 01306 887908

Swimming Redhill - Doynings

There are lessons with a qualified instructor for children with special needs on Wednesday evenings, from 6.30 to 7.30pm. There is also a drop in session daily from 3.30 for all abilities.

Telephhone :01737 764732

Beavers Swimming Club

Club for children and adults with physical and learning disabilities held every Wednesday evening. There is fun in the water with one to one helpers and extra help once a month. Members meet for coffee after swimming. For more details on the above clubs contact:

Telephone: 01737 644056

Able Too -Tandridge

Sessions for people with special needs are held on Tuesday, Wednesday, Thursday and Sunday mornings from 9-10am at Tandridge Leisure Pool. One helper for the person with disability goes free. Contact:

Telephone: 01883 722811

Holiday Action with Reigate & Banstead Borough Council

School holiday activities for 8-16 year olds and centre based school holiday activities for 5-10 years olds. Contact:

Leisure Services

Telephone: 01737 248424

Dorking Playscheme

This playscheme for children and teenagers runs for several days during Easter and for a couple of weeks in the summer. The scheme organises creative play, games and outings. It is open to children who live in the Dorking area.

For more details contact:

Telephone: 01306 885001

Horley Playscheme

This scheme for children and teenagers runs for several days at Easter and for two weeks in the summer holidays. The children are split into two age groups, 3-10 year olds, and 10-19 years. Lots of different activities, games and outings. There is a qualified play leader present at all times. For more details contact:

Telephone: 01737 276127

Redhill and Reigate Playscheme

This scheme for children and young adults is held from 9.30am to 3.30pm at Wray Common School. The children are split into two groups 3-10 years - 2 days Easter, 1 week August; 10-19 years -2 days Easter, 1 week August. There is a range of activities that include, Bouncing Castle, Swimming, Outings and Indoor Activities. Contact:

Telephone: 01737 276127

Tandridge Rainbow Playscheme

This scheme organised by Tandridge Mencap runs for five weeks during the summer holidays. The children aged between 2-19 years are split into three age appropriate groups. Activities include crafts, play activities, swimming and outings. For more details contact:

Telephone: 01737 225902

Also see Section 4, Factsheets 3 - 5 (Leisure Activities A-Z)

Deaf Services / Surrey Deaf YK Youth Club

Based at Lintons Youth Club, Lintons Lane, Epsom. Aimed at deaf and hard of hearing young people aged 12 – 25.

Contact:

Ian Brown

Telephone: 01372 376558

Trish Adams - Lintons Centre

Telephone: 01372 722644

Elmbridge Special Needs Youth Club

The club meets on Tuesday evenings from 6.30-8.30pm during term time at Walton Youth Centre, 1a Elm Grove, Hersham Road, Walton.

For more details contact:

Telephone: 01932 247569

Epsom & Ewell Puffins

This Sports Club for people with disabilities meets weekly at the Rainbow Centre, Epsom. For further information contact:

Telephone: 020 8393 9477 (eve)

Fun 4 All Group (Mencap)

Meets the last Wednesday of each month at Christchurch Hall, Christchurch Road,

Epsom.

For further information contact:

Telephone: 01372 278542

Or Mencap Leisure Development

Telephone: 01737 225902

Funtastic

Leatherhead Crossroads runs this club for children between 5 - 18 years. It meets on Saturdays from 11am to 4pm at St Faith's Family Centre, Cleeve Road, Leatherhead. The club is open to children living in the Mole Valley area. For more details contact:

Telephone: 01306 877071

Gateway Clubs

Affiliated to Mencap these aim to advance the personal development of people with learning disabilities. These clubs cover a wide range of ages and abilities but are mostly for 14 or 16+ years.

Telephone: 01622 674222

Elmbridge

Meets alternate Wednesdays at Burview Hall, Queens Road, Walton on Thames. For further information contact:

Telephone: 01932 225747

Mid Surrey

Meets Tuesday evenings 7.30-9.30pm at (Mencap) Fortyfoot Hall, Fortyfoot Road, Leatherhead.

For more information contact:

Telephone: 01737 353953

Generation Resource Centre

Generation is a local Christian Church serving three areas, Epsom, Ewell and Worcester Park. Volunteers organise 2 clubs on Thursdays at Cheam Common Infants School:

Live Wires: 5-7 years

Powerpoint: 8-11 years

For further information contact:

Telephone: 020 8786 8221

Horseriding

Epsom Group Riding for the Disabled offers a wide variety of classes to children of all ages. The centre is based at St Ebba's Farm, Hook Road, Epsom.

For more information contact:

Telephone: 01372 743690

www.epsomrda.org.uk

Horsley & Bookham

Telephone: 01372 453098

Kids List

Epsom & Ewell Borough Council organise a range of activities for children throughout the year. Whenever possible sessions are available to all children. They also produce a booklet three times a year called 'Kids List'. To join their mailing list and get up to the minute information on all activities contact:

Telephone: 01372 732000

Leatherhead Swans

Swimming, canoeing, multi-gym, workouts, etc. Club meets every Tuesday 7-10pm at Leatherhead Leisure Centre.

For more information contact:

Telephone: 01306 875058

Or Leatherhead Leisure Centre

Telephone: 01372 377674

The Lifetrain Trust (formerly PHAB)

-Ashtead 16+

Club meets Tuesday evenings at St George's Church Hall, Barnett Wood Lane, Ashtead.

For further information contact:

Telephone: 01372 276010

Epsom & Ewell PHAB

Club for children aged between 8 - 18 years, meets every Friday 7.30-9.30pm at The Linton Centre, Lintons Lane, Epsom. Contact:

Telephone: 01372 729492

2nd Hook Scout Link Club

Scout Group for children with disabilities meets Monday evenings from 7 to 9pm. For further information contact:

Scout Hut

Hook Road

Chessington

Telephone: 020 8391 0983

Wheelchair Sports

Chessington Sports and Leisure Centre organise a variety of wheelchair sports including badminton and table tennis. Contact:

Chessington Sports & Leisure Centre

Telephone: 020 8974 2277

LEISURE

SPORTS & RECREATION IN MID SURREY

Also see Section 4, Factsheets 3 - 5 (Leisure Activities A-Z)

Local Council Leisure / Sports Development Officer

Your local borough or district council will be able to advise you about leisure and sport opportunities in your area.

Contact:

Elmbridge Borough Council

Telephone: 01372 474474

www.elmbridge.gov.uk

Epsom & Ewell Borough Council

Telephone: 01372 732000

www.epsom-ewell.gov.uk

Mole Valley District Council

Telephone: 01306 885001

www.mole-valley.gov.uk

Royal Borough of Kingston upon Thames

Telephone: 020 8546 2121

Sports Centres & Swimming Pools

Most Sports/Leisure Centres and Swimming Pools have a range of activities for people with disabilities, often at a discounted price. For times and other details please contact:

Banstead Sports Centre

Merland Rise

Tadworth Telephone: 01737 361933

Chessington Sports & Leisure Centre

Chessington Community College

Garrison Lane

Chessington

Telephone: 020 8974 2277

Elmbridge Leisure Centre

Waterside Drive

Walton on Thames

Telephone: 01932 245679

Kingfisher Leisure Centre

Fairfield Road

Kingston upon Thames

Telephone: 020 8546 1042

Leatherhead Leisure Centre

Guildford Road

Leatherhead

Telephone: 01372 377674

Malden Centre

Blagdon Road

New Malden

Telephone: 020 8949 3330

Rainbow Leisure Centre

East Street

Epsom

Telephone: 01372 749505

Tolworth Recreation Centre

Fullers Way North

Tolworth

Telephone: 020 8391 0684

Walton Swimming Pool

Kings Close

Walton on Thames

Telephone: 01932 222984

Theatres

Dorking Halls

Dorking

Telephone: 01306 881717

Epsom Playhouse

Ashley Avenue,

Epsom

Telephone: 01372 742555

Both of these theatres have seats set aside for wheelchair users and have good facilities.

The Polka Theatre has regular signed performances, a hearing induction loop and is fully accessible to wheel chair users; we also provide touch tours of the stage on request. Workshops for groups of children with special needs can be arranged in drama, storytelling, mask and craft.

For further information contact:

Bryony Lawrence

Polka Theatre

240 The Broadway

Wimbledon SW19 1SB

Telephone: 020 8545 8320

Duggie Dug Dug

Children's Summer Activity Weeks held for 2 weeks in July at Epsom & Ewell High School, Ruxley Lane, Ewell. Contact:

Telephone: 020 8393 8000

Epsom Health Care Summer Holiday Playscheme

This scheme is for 5 to 12 years and is held at Rosebery School, White Horse Drive, Epsom. It is run by Epsom Health Care NHS Trust, and is open to children from the local community and surrounding areas.

For further details contact:

Telephone: 020 8296 4169

Storytime

Stoneleigh Library holds children's storytime every Tuesday 2.15pm to 2.45pm that continues throughout the holidays.

Contact:

Telephone: 020 8394 0328

White Lodge Centre

(Registered charity)

White Lodge Centre is a resource which seeks to support disabled children, adults and their families/carers in the Surrey area, by providing a range of flexible, creative and integrated resources.

For further information contact:

Play and Leisure Services

White Lodge Centre

Holloway Hill

Chertsey KT16 0AE

Telephone: 01932 567131

SURREY HELP FILE

SECTION FIVE - FINANCE

list of contents

Factsheet 1 - Which Benefits

Where to Begin Citizens Advice Bureaux (CAB)

Benefits Enquiry Line Disability Information Service Surrey (DISS)

When to Claim Disability Alliance

Factsheet 2 - Disability Living Allowance

Getting Disability Living Allowance Other Help

Care Component Revisions and Appeals

Mobility Component Hospital and Special Accommodation

Current Rates and How to Claim Going into Hospital

Exemption from Vehicle Excise Duty Going into Residential Respite Care

Factsheet 3 - Carer’s Allowance, Income Support, Incapacity Benefit

and Jobseekers Allowance

Carer’s Allowance: Housing Costs:

How to Claim and Current Rates How to Claim

Income Support: Other Information

How Much You Get Incapacity Benefit (IB) for Young People

Personal Allowances How to Claim and Current Rates

Premiums - Family, Disabled Child's, Enhanced Disability and Carer's Jobseekers Allowance:

How to claim

Factsheet 4 - Social Fund, Working Tax Credit, Housing and Council

Tax Benefits

Social Fund: Housing Benefit:

Crisis Loan and How to Apply How to Claim

Working Tax Credit Council Tax Benefit:

How Much You Get and How to Claim How to Claim

Factsheet 5 - Motability, Blue Badge and Family Fund

Motability Qualification and How to Apply

Exemption from Road Tax Family Fund:

Disabled Persons Parking Disc:

The maze of benefits in existence and the range of sources from which financial assistance can be obtained make the task of getting money you are entitled to very baffling. Unfortunately, this often deters people from claiming what is rightly theirs.

Where to Begin

Leaflet FB2 'Which Benefit?' outlines all Social Security and NHS benefits available.

Leaflet NI196 'Social Security Benefit Rates' details the amount you get paid for each benefit.

Leaflet FB31 'Caring for Someone' details the benefits you as a carer may be able to claim to get additional help with your own income.

Information on social security benefits is available in eleven other languages - Arabic, Bengali, Chinese, Greek, Gujarati, Hindu, Punjabi, Somali, Turkish, Urdu and Vietnamese. Ask for leaflet FB22 in the language you want. It is also available in Welsh as FB2 Wales.

These leaflets, together with information on all benefits, are available from some Post Offices, Citizens Advice Bureaux or your local benefits office.

Benefits Enquiry Line (BEL) is a national telephone helpline giving advice and information on all Social Security benefits to people with disabilities, their carers and their representatives. The call is both free and confidential.

BEL's telephone lines are open from:

8.30am to 6.30pm Monday to Friday and

9am to 1pm on Saturdays.

Telephone: 0800 88 22 00

Customers who are deaf or hearing impaired and have access to a textphone can obtain the above services on a special textphone number.

For this service call: 0800 24 33 55

They will also help you fill in a form over the telephone.

For this service call: 0800 44 11 44

Benefits information on the Internet:

www.dss.gov.uk.ba

When to Claim - Crucial ages are from:

3 months Disability Living Allowance

Care Component

2 years Disabled Parking - Blue Badge

3 years Mobility Component of

Disability Living Allowance

Motor Tax Exemption

16 years Incapacity Benefit

Income Support

Advice and information is also available from:

Citizens Advice Bureaux (CAB)

This independent organisation provides a free, impartial and confidential advisory service on a wide variety of subjects. They will also help you make a claim. Contact your local office:

Addlestone & Chertsey 01932 842666

Ash 01252 315569

Banstead 01737 360632

Camberley 01276 61551

Caterham & Warlingham

01883 44777

Cranleigh 01483 273378

Dorking 01306 76805

Epsom & Ewell 01372 720205

Esher 01372 464770

Farnham 01252 716319

Guildford 01483 576657

Haslemere 01428 643413

Horley 01293 786346

Leatherhead 01372 375522

Oxted 01883 715525

Redhill 01737 762661

Reigate 01737 223340

Staines 01784 444220

Sunbury & Shepperton 01932 65941/2

Walton, Weybridge & Hersham

01932 248660

Woking 01483 763840

Disability Information Service

Surrey (DISS)

DISS is a disability information service. We give free, confidential and impartial information on anything to do with living with disabilities. This includes information on self-help groups, equipment, employment, holidays, education, benefits, recreation, access and transport.

DISS aims to provide high quality information on all aspects of living with disability, to help people make informed choices.

Enquiries can be answered over telephone, by post, fax, E-mail or you are welcome to visit. DISS is wheelchair accessible. We can also provide large print, audiotapes and braille.

Contact:

Harrowlands,

Harrowlands Park

South Terrace

Dorking RH4 2RA

Telephone: 01306 875156

Minicom: 01306 742128

Fax: 01306 741740

www.diss.org.uk

Email: info@diss.org.uk

Disability Information Services in Surrey:

DisCASS: 01483 860551 (Disabled Citizens Advice & Support Service)

DAIRS: 01932 566622 (Runnymede & Spelthorne)

DAISE: 01932 248660 (Elmbridge)

DATA: 01883 722593 (Tandridge)

DICE: 01372 735243 (Epsom)

WIDE: 01483 747400 (Woking)

Disability Alliance

Disability Alliance provides information on benefits through publications (like the Disability Right Handbook), free briefings, the Rights Advice Line and training. It campaigns for improvements to the social security system.

Universal House

88-94 Wentworth Street

London E1 7SA

Rights Advice Line,

Telephone and Minicom:

020 7247 8763

(2-4pm Monday and Wednesday)

Office Telephone and minicom:

020 7247 8776 (10am-4pm)

Fax: 020 7247 8765

www.disabilityalliance.org

Email: office.da@dial.pipex.com

Disability Living Allowance (DLA)

This is a tax-free benefit for adults or children with an illness or a disability who need help with personal care; with getting around - or both (more help or supervision than other children of the same age who do not have their particular problems).

DLA is not means tested and can normally be paid on top of any other benefits you receive.

Getting Disability Living Allowance: - does not normally need a medical examination. Disability Living Allowance is payable in two parts and either or both can be claimed.

Care Component - If you have a child aged 3 months or over you may be able to get DLA for help with personal care or extra supervision because they are ill or disabled. For example things like washing, dressing, using the toilet. If they are 16 or over this can include preparing a cooked main meal. You can get DLA even if no one is actually providing the care needed.

Mobility Component - If you have a child of 3 or over who:- cannot walk at all or has difficulty in walking because they are ill or disabled, can walk but needs someone with them to make sure they are safe or to help them find their way around most of the time.

To get DLA they must normally have needed help for at least three months and be likely to need it for at least a further six months.

Current Weekly Rates: - DLA provides three rates for help with personal care and two rates for help with getting around.

Care Component: Highest rate: £57.20

Middle rate: £38.30

Lowest rate: £15.15

Mobility Component:

Higher rate: £39.95

Lower rate: £15.15

How to claim

Claim form DS704 Disability Living Allowance (also ask for Leaflet HB6 A practical guide for disabled people) from the local Social Security office, Citizens Advice Bureau, Post Office or by ringing the Disability Benefit Centre.

Telephone: 020 8652 6000

Use the tear off strip to send for a full claim pack DLA1 (child). The claim pack looks fairly complex at first glance and you may need to ask your CAB for help in completing the form. It is very important that you give, as much detail as is possible about your child's care needs. It is also necessary to obtain information from professional people who know of your child's situation.

Remember:

For advice freephone: 0800 88 22 00

For help filling in the form freephone: 0800 44 11 44

If you are already claiming D.L.A and your circumstances change, write to:

D.L.A.

Warbreck House

Warbreck Hill Road

Blackpool FY2 OYE

Customer Care Helpline:

08457 123456

Exemption from Vehicle Excise Duty

When you receive the higher mobility component, you should also be sent an Exemption form for Vehicle Excise Duty (Road Tax) for a vehicle used by your child, which you should present at the Local Vehicle Registration Office for your Free Road Tax Certificate.

To find your local Vehicle Registration Office ring:

DVLA Customer Enquires Line

Telephone: 08702 400 010

Other Help - If you are 16 or over and working at least 16 hours a week you may be able to get Working Tax Credit. You may also get a Christmas Bonus

Revisions and appeals - if a claimant is dissatisfied with a decision on their claim they can ask a Decision Maker to look at the decision again. A Decision Maker will revise the decision on any grounds if the request for revision is received within three months of the date the decision was sent. A different Decision Maker will carry out the revision. If the claimant is dissatisfied with the decision they may appeal to an independent tribunal. You normally only have one month in which to appeal.

If you are not happy with your decision, you can then appeal to a Disability Appeal Tribunal and you will be invited to meet the Tribunal and explain the disability and effects. The Tribunal consists of three people, a legally qualified Chairperson, a doctor and a lay person with experience of the needs of disabled people or someone who is themselves disabled.

Hospital and Special Accommodation Effect on DLA payments

Both your mobility and care component can normally only be paid up to 28 days in hospital. You must notify the DLA Unit if your stay is likely to be longer.

Going Into Hospital

If your child is under 16, the care and mobility components stop being paid once your child has been in hospital for a full 84 days.

Going Into Residential Respite Care

During periods of residential care you are still entitled to claim the care component for the first 4 weeks of care, with a 28 day linking rule.

The 28-day linking rule applies if you use a respite unit on a regular basis. When care is only for short periods of time and 29 days or more separates each admission, then you may keep your full allowance. You need only notify the DLA Unit of admission and discharge dates. If you use the unit on a more regular basis the care component may be reduced or stopped. Do take further advice on this rule.

For more help on this rule telephone: Benefits Enquiry Line: 0800 88 22 00

Carer’s Allowance (CA)

This is a new name for Invalid Care Allowance. It is a weekly taxable allowance for anyone who spends at least 35 hours a week looking after someone who gets the DLA care component at the middle or higher rate. It is payable to anyone aged 16 or over. People aged 65 and over can now claim as well.

You can earn up to £77pw and still get CA, but you will not be entitled if in full-time education.

Any Income Support you receive will be reduced by the amount of CA you claim. However, it is still worth claiming because it will entitle you to a "carer premium" worth an extra £25.10pw.

CA can be backdated up to 3 months providing that you satisfied the conditions throughout that period.

How to Claim

Claim form DS700 Invalid Care Allowance (also ask for FB31 Caring For Someone) from your local Social Security Office, Citizens Advice Bureau, Post Office, Hospital or Social Care Department.

Current CA rates: £43.15 per week

Income Support (IS)

This is a benefit for people aged 16 or over whose income is below a certain level. To get Income Support you must be: incapable of work through sickness or disability; looking after someone with a disability; registered blind; work less than 16 hours a week, or if your partner works for less than 24, you may get help to top up part-time earnings or other benefits.

Your right to IS does not depend on National Insurance contributions. You, or you and your partner together must not have over £8,000* in savings. Savings between £3,000 and £8,000* will affect the amount you can get. If you live permanently in a residential care home, you will not get benefit if your savings are more than £16,000. Savings between £10,000 and £16,000 will affect the amount of benefit you get.

* £12,000 if you or your partner are aged 60 or over.

How much you get

The amount you get depends on, among other things, how old you are, whether you have a partner, whether you have any dependent children and how old they are, whether you or anyone in your family has a disability, how much money you and your partner has coming in each week. Your Income Support payment may be made up of three parts:

Personal Allowances are weekly payments towards day to day living expenses for you and your partner, if you have one, and for any children or young people for whom you are responsible.

Premiums are weekly additions to IS personal allowances for some people who have extra needs:

'Family Premium' - If you have at least one child.

Disabled Child's Premium - If you have a child who is receiving Disability Living Allowance for personal care or mobility at any of the rates. This premium is not always paid automatically so make sure that you claim if you think you qualify.

Enhance Disability Premium – If you or your child gets the highest care component of DLA.

Carer's Premium - If you receive the Carer’s Allowance remember to claim.

Housing Costs to help with mortgage interest and certain other housing costs not met by Housing Benefit. If you or your partner are under 60, you will only get limited help.

If you get IS you, or anyone you claim for will also get free prescriptions, dental treatment, help with the cost of glasses, free school meals, help with cost of travelling to hospital and free milk and vitamins. IS is also a qualifying benefit for Social Fund Community Care Grants.

How to Claim

Claim form IS1 Income Support from your local Social Security Office. Claim forms for Council Tax Benefit and Housing Benefit are automatically included with your I.S. claim.

Other Information

It may be worthwhile you claiming IS if you are over 16 and have a disability. You are still entitled to IS even if you are still attending school and you are unlikely to work in the future because of illness or disability. You will need to produce a Doctor's sick note or letter.

Incapacity Benefit (IB) for Young People

IB is a tax-free benefit for people who have been unable to work for at least 28 weeks because off illness or disablement, but have not paid any or enough NI contributions. You must be aged between 16 and 20 (or 25 in some cases) when you claim. It should always be claimed by you if you are over 16 and have a disability. You are still entitled to IB even if you are still attending school and you are unlikely to work in the future because of illness or disability. You will need to produce a Doctor's sick certificate.

How to claim

Contact your local Social Security office for details. You can make the claim up to 6 weeks before your 16th birthday.

Current IB rates:

£54.40 (1st 28 weeks)

£64.35 (weeks 29-52)

£72.15 (weeks 53 onwards)-plus age addition £14.90

Jobseekers Allowance

If you are of working age and looking after a child who does not receive the middle or higher care component of Disability Living Allowance, and wish to claim for financial assistance you may have to sign on as being eligible for work in order to receive the jobseekers allowance. If you are not required to sign on, you will continue to receive Income Support. The rules are complex, so take advice.

How To Claim

See Leaflet JSA LTP2 from the Job Centre or Social Security Office.

FINANCE

Social Fund

The Social Fund helps people with expenses which are difficult to pay for out of regular income. Getting help from the Social Fund does not depend on your National Insurance contributions, but it is means tested.

If you are on Income Support and you or someone in your family is disabled you may be able to get a Community Care Grant. This is not a loan and does not have to be repaid. For example, it could be for bedding, clothing, laundry equipment, gas and electricity reconnections, decoration, furnishings, heaters, safety items and essential travelling costs. Grants are discretionary and not for a standard amount.

Your local social security office has the ultimate decision about your grant application and you may be turned down. You may also be offered a loan instead of a grant, which you would have to pay back out of your weekly benefit. For details ask your Social Security Office for Form SF300. Do take independent advice from the CAB before agreeing to a loan.

Crisis Loan

You do not have to be on Income Support or any other social security benefit to get a Crisis Loan. You may be able to get a Crisis Loan to help meet your immediate needs in an emergency or following a disaster where there would otherwise be a serious risk to your, or your family's, health or safety.

How to apply for a Crisis Loan

Contact your social security office, or the nearest one if you are away from home at the time of need.

Working Tax Credit

This is a regular tax-free cash benefit for low income working families with children. Working Tax Credit is for people working for 16 hours or more a week. You can claim whether your work is for an employer or self-employed. If you are responsible for at least one child aged under 16 (or 19 if in full time education up to A level or equivalent standard) you will also qualify for a Child Tax Credit.

How Much You Get

The amount of Tax Credit you get depends on how many children you have and their ages; the income coming into the household; any savings you or your partner may have; the number of hours you or your partner work.

You may be entitled to childcare tax credit to help towards the cost of childcare.

To qualify you must have arranged childcare before you send in your application for Working Tax Credit.

The childcare tax credit will be 70 pence for every pound you pay out but only to cover payments of up to:

This means the most you will get is £94.50 for one child or £140 for two or more children.

Qualification for Working Tax Credit may make you eligible for other types of help such as free prescriptions, free eye tests, vouchers for glasses and fares to hospital.

For more information or advice call the

Helpline: 0845 300 3900

How to Claim

Telephone the Helpline or contact your Inland Revenue Office.

Housing Benefit (HB)

This is a tax-free benefit paid by Local Councils to people who need help to pay their rent. You may also get Housing Benefit if you live in a hotel, guesthouse, hostel or somewhere similar and need help with your rent. You may be able to get HB whether you are employed, self-employed, unemployed or retired, and you don't have to be getting Income Support. It does not matter if you live alone or with other people, who are in work or unemployed.

It is not paid to help with the costs of mortgage interest payments, fuel or service charges.

How to Claim

Get a claim form from your local council office (see Council Tax Benefit) if you are not claiming Income Support. If you are claiming IS you should automatically get a claim form.

Council Tax Benefit

The Council Tax is a local tax set by your borough or district council to help pay for local services. There is one bill per dwelling, which will usually be payable by the owner-occupier or tenant, including council tenants. If you are on low income and find it hard to pay your council tax, you may be able to get help from the Council Tax Benefit Scheme.

The full Council Tax bill assumes that there are 2 or more adults in a property. If only one person lives in a property as their main home they will receive a 25% discount. You may get second Adult Rebate if someone over 18 lives with you but is on low income or Income Support. Certain groups of people will not be taken into account and will be 'disregarded' when assessing the number of adults in the dwelling. These include: Persons Caring for someone with a disability (certain criteria must be met); severely mentally impaired people.

A property in which a disabled person lives may qualify for a reduction in the amount of Council Tax payable. You are eligible for such a reduction if one or more of the following apply: (i) A room which is not a bathroom, lavatory or kitchen is mainly used by and is required for meeting the needs of any disabled person resident in the dwelling. (ii) A bathroom or kitchen (which is not the only bathroom or kitchen) is used for meeting the needs...etc. (iii) Sufficient floor space to permit the use of a wheelchair required for meeting the needs ...etc.

If you think a discount should apply to your home you should tell the council.

Council Tax Benefit of up to 100 per cent is available for people responsible for council tax bills who are on Income Support or low income. There is no minimum contribution. The amount of benefit you can get depends on the amount of your council tax bill, your income and savings and on your personal circumstances - for example whether you have children and how many, or whether you have a disability.

How to Claim

If you think you are eligible for Council Tax Benefit, you should apply to your local council office. Ask for leaflet CTBI Help with the Council Tax.

FINANCE

Motability

(Registered charity)

This voluntary organisation helps people to use their higher rate D.L.A. mobility component to lease a new car. They also offer hire-purchase terms to enable people to purchase rather than lease. For more details and application form:

Goodman House

Station Approach

Harlow

Essex CM20 1HR

Customer Information Services

Telephone: 01279 635666

Exemption From Road Tax

To qualify your child will need to be receiving the D.L.A. mobility component at the higher rate. Leaflet V188, obtainable from main Post Offices, explains the procedure. If you have any queries or need further assistance contact

DVLA

Customer Enquiry Line: 01792 772134

Disabled Persons Parking Disc

The Blue Badge scheme of parking concessions is designed to help people with severe mobility problems by allowing them to park close to shops, public buildings and other places they might like to visit. You can park without charge or time limit at parking meters and, where

yellow lines indicate parking restrictions,

for up to 2 hours, as well as in areas specially set aside for disabled parking.

To qualify:

The disabled person must be over 2 years old;

or

government department or getting a

grant towards running their car

or

or

N.B. Although the rules say that the disability should be permanent, don't read this as meaning 'for life'. It is worth applying for a Blue Badge so that you can use it for as long as it is necessary, until your child's condition improves.

How Can I Apply?

Contact:

Surrey County Council

Car Badge Section

County Hall

Penrhyn Road

Kingston KT1 2DJ

Telephone: 08456 009 009

Family Fund

(Registered charity)

We champion an inclusive society where families with severely disabled or seriously ill children have choices and the opportunity to enjoy ordinary life.

The Family Fund helps families of severely disabled and seriously ill children under the age of 16. We give grants and information related to the care of the child including holidays, leisure, laundry equipment, driving lessons and lots more. Range of information includes benefits, holidays, transport, Taking Care, After age 16 and more.

If your income is £23,000 or less we may be able to help. Apply by phone, online or in writing giving your child’s name and date of birth, their disability and tell us the help you need.

Family Fund

PO Box 50

York YO1 9ZX

Telephone: 0845 130 45 42

Minicom: 01904 658085

www.familyfund.org.uk

Email: info@familyfund.org.uk

Fax: 01904 652625

Back To The Top Of The Page

Social Care

Minor adaptation to the home - Occupational Therapists can advise you on how to make it easier for you to manage you child at home and on what equipment and alterations to your home would suit you best. Financial assistance can sometimes be given and will involve financial assessment. Personal equipment for example: bathing and feeding aids, hoists, commodes, handrails, walking equipment are mostly loaned free of charge. Contact your Social Worker.

Local Councils

Major home adaptations - a grant may be available to help towards the total cost of major building works. Contact your local District or Borough Council for more information and advice.

(see Section 7 – Useful addresses)

Health Service

Equipment to help you cope with incontinence - plastic pads, mattress covers and nappies, talk to your Continence Advisory Service. Equipment for the bedridden or chairbound - ripple mattress and cushions, commodes, talk to your Health Visitor attached to your GP surgery.

For those in need of surgical appliances and / or specialised footwear, referral to the Hospital Orthotists is through the paediatric, physio or occupational therapists and the relevant responsible medical consultant. This is to ensure the orthotic equipment ordered is appropriate and necessary.

Those prepared to meet the cost of orthotics themselves could contact the following:-

Orthotists

Peter Honeycombe

Orthotic Centre

The North Hampshire Hospital

Aldermaston Road

Basingstoke, Hants.

Tel: 01256 314764

Fax: 01256 811326

Paul Keeping

Independent Orthotics

Tel: 07958 424472 (mobile)

Andrew Tagg

Middle Hoe

Hoe Road

Bishop’s Waltham

Southampton SO32 10SS

Tel: 01489 894966

Specialised Shops

Kristena Shoes

154 Fleet Road

Fleet

Hants GU13 8PD

Contact: Laurence Garrett

Tel: 01252 613800

Mark Kimber Shoes

64 High Street

Godalming, Surrey

Contact: Mark Kimber

Tel: 01483 416543

(also a branch in Petersfield)

Newmans Shoe Shop

186 High Street

Crowthorne, Berks

Contact: Mrs Joanne Healen

Tel: 01344 772784

Disability Equipment Shop

The Voluntary Association for Surrey Disabled have a shop at Rentwood Resource Centre, open Monday, Wednesday and Friday, 10.30am-12.30pm. Items for sale are most suitable for older children and adults.

For more information telephone during shop opening times on 01372 375553 or 01306 741500 at other times.

Chailey Heritage Clinical Services

Custom made equipment for children and young adults can be made here. Contact:

Rehabilitation Engineering Service

North Chailey, Nr Lewes

E Sussex BN8 4JN

Telephone: 01825 722112

The Disabled Living Foundation

(Registered charity)

Runs an information service and has a permanent exhibition of equipment for eating and drinking, personal toilet, mobility aids, furniture, toys, also children's clothing and footwear. They also have a booklet available "With a little help". Contact:

Disabled Living Foundation

380-384 Harrow Road

London W9 2HU

Telephone: 020 7289 6112

www.dlf.org.uk

REMAP - Custom made equipment for disabled people (Registered charity)

Is a group of professionally qualified technicians who work voluntarily to provide aids and equipment to meet individual needs where the need is not met by the standard range of equipment. Contact:

Telephone: 0845 130 0456 (South East)

www.remap.org

Mobility Equipment - Wheelchairs

Help with mobility - tricycles, major buggies, pushchairs, wheelchairs - is available in certain circumstances. Your paediatrician, or GP can refer you to a Health Occupational Therapist or to the local Wheelchair Clinic for assessment, advice and supply.

The British Red Cross

(Registered charity)

Can loan, for a short period, some of the equipment mentioned above including rubber sheets, air rings and wheelchairs. For details of your nearest loan service contact the Surrey Headquarters:

British Red Cross Surrey HQ

Telephone: 01483 572396

www.redcross.org

Back To The Top Of The Page

Legal & other advice

Legal Advice

Legal Advice may be obtained from your local Citizens Advice Bureaux, usually by appointment.

Children's Legal Centre

The University of Essex offers a free helpline service, contact:

Children's Legal Centre

University of Essex

Wivenhoe Park

Colchester CO4 3SQ

Telephone: 01206 872466

Law Society

The Law Society’s Group for solicitors with disabilities (GSD) aims to achieve equality of opportunity for people with disabilities, whether solicitors, would-be solicitors, clients or members of the general public.

The Law Society

113 Chancery Lane

London WC2

Telephone: 020 7320 5793

www.gsdnet.org.uk

The Disability Law Service

The Disability Law Service is made up of solicitors, advisors and trained volunteers who provide up to date, informed legal advice for disabled people, their families, enablers and carers. The advice is free, and the service offers complete confidentiality.

The Disability Law Service

39-45 Cavell Street

London E1 2BP

Telephone: 020 77919800

Minicom: 020 7791 9801

www.abilityonline.net

Surrey Access Forum

This organisation was set up to raise the awareness of all to the needs of disabled people in particular:

For further information contact:

Telephone: 01276 489980

Or via the DISS website: www.diss.org.uk

Surrey Community Action (formerly Surrey Voluntary Services Council)

Primary role is resourcing voluntary and community action through access to advice, training, funding and advocacy.

They may be able to help by signposting to other organisations.

Telephone: 01483 566072

Back To The Top Of The Page

ACTION FOR BLIND PEOPLE

14-16 Verney Road, London, SE16 3DZ

Tel: 020 732 8771

www.afbp.org

ACTION FOR SICK CHILDREN (formerly NAWCH)

C/o National Children’s Bureau, 8 Wakley Street,EC1V 7QE

Tel: 020 7843 6444

www.actionforsickchildren.org

ACTION FOR VICTIMS OF MEDICAL ACCIDENTS

Tel: 020 8291 2793

ADHD-Attention Deficit Hyperactivity Disorder National Alliance

4th Floor, 170 Tottenham Court Road, London, W1T 7HA

Tel: 020 7380 1261 x247

ADVISORY CENTRE FOR EDUCATION

1B Aberdeen Studios, 22-24 Highbury Grove, London

N5 2DQ

Helpline: 0808 800 5793

2-5pm

Tel: 020 7354 8321

AFASIC - Association for all Speech Impaired Children

2nd Floor, 50-52 Great Sutton Street, London, EC1V 0DJ

Tel: 020 7490 9410

Helpline: 0845 355 5577

www.afasic.org.uk

ALBINISM FELLOWSHIP for supportive and friendly regional groups

PO Box 77, Burnley, Lancs, BB11 5GN

Helpline: 01282 771900

Tues & Fri 2-3pm

www.albinism.org.uk

ALLERGY AND INTOLERANCE

ANAPHYLAXIS CAMPAIGN

PO Box 275, Farnborough, GU14 7SX

ALLERGY UK

Deepdene House, 30 Bellegrove Rd, Welling, DA16 3PY

Tel: 01252 542029

www.anaphylaxis.org.uk

Helpline: 020 8303 8583

9am-9pm, Mon-Fri

www.allergyfoundation.com

ALLFIE – Alliance for Inclusive Education

Unit 2, 70 South Lambeth Road, London, SW8 1RL

Tel: 020 7735 5277

Helpline; 020 7582 5008

www.allfie.org.uk

ARTHROGRYPOSIS GROUP (TAG)

Beak Cottage, Dunley, Stourport on Severn, DY13 0TZ

Tel: 01747 822655

ASTHMA - NATIONAL ASTHMA CAMPAIGN

Providence House, Providence Place, London, N1 ONT

Tel: 020 7226 2260

Helpline: 0845 701 0203

ASSOCIATION FOR SPINA BIFIDA & HYDROCEPHALUS (ASBAH) 42 Park Road, Peterborough, PE1 2UQ

Tel: 01733 555988

www.asbah.org

AUTISM

AUTISM UK - National Autistic Society

393 City Road, London, EC1V 1NG

Tel: 020 7833 2299:

Helpline: 0870 600 8585

10am-4pm Mon-Fri

www.nas.org.uk

AUTISM INDEPENDENT UK

199 - 201 Blandford Avenue, Kettering, Northants, NN16 9AT

Tel: 01536 523274

www.autismuk.com

BEDWETTING AND INCONTINENCE

Continence Foundation

ERIC-see enuresis

Incontact

Tel: 0845 345 0165

www.aca.uk.com

Tel: 01179 603060

Tel: 020 7700 7035

BEREAVEMENT AND TERMINAL ILLNESS

ACT, for children with a life-threatening condition and their families - Orchard House, Orchard Lane, Bristol, BS1 5DT

CHILD BEREAVEMENT TRUST, for bereaved children – Aston House, High Street, West Wycombe, High Wycombe, HP14 3AG

CHILD DEATH HELPLINE, 7-10pm, M W + F 10am-1pm

COMPASSIONATE FRIENDS, for bereaved parents –

53 North Street, Bedminster, Bristol, BS3 1EN

CRUSE, Bereavement Care – 126 Sheen Road, Richmond, TW9 1UR

HOSPICE INFORMATION SERVICE

RAINBOW TRUST, for terminally ill children and their families – 47 Eastwick Drive, Great Bookham, Leatherhead, KT23 3PU

REACT, funds and equipment for terminally ill children –

St Lukes House, 270 Sandycombe Road, Kew, TW9 3NP

STARLIGHT CHILDREN’S FOUNDATION, grants wishes for ill children – 11-15 Emerald Street, London, WC1N 3QL

SUDDEN DEATH SUPPORT ASSOCIATION

THE BRIGITTE TRUST, and Hospice Home Care

Tel: 0117 922 1556

www.act.org.uk

Helpline: 0845 357 1000

Tel: 01494 446648

www.childbereavement.org.uk

Helpline: 0800 282986

Tel: 01179 539639

Tel: 020 8332 7227

Tel: 0870 903 3903

Tel: 01372 453309

www.rainbowtrust.org.uk

Tel: 020 8940 2575

Tel: 020 7430 1642

www.starlight.org.uk

Tel : 081189 889797

Tel: 01306 881816 Email: brigittetrust@btinternet.com

BIRTH DEFECTS FOUNDATION

BDF Centre, Hemlock Way, Cannock, WS11 2GF

Tel: 08700 707020

www.birthdefects.co.uk

BLIND - Royal National Institute for the Blind

105 Judd Street, London, WC1H 9NE

See also DEAF/BLIND and RETINITIS PIGMENTOSA

Helpline: 0845 766 9999

www.rnib.org

BRITTLE BONE SOCIETY

30 Guthrie Street, Dundee, DD1 5BS Tel: 01382 204446 / 7

www.btittlebone.org

Helpline: 08000 282459

BRITISH BLIND SPORTS

4-6 Victoria Terrace, Leamington Spa, CV31 3AB

Tel: 01926 424247

BRITISH BURN ASSOCIATION

Tel: 0161 291 6323

BRITISH INSTITUTEOF LEARNING DISABILITIES

Campion House, Green Street, Kidderminster, DY10 1JL

Tel: 01562 723010

BRITISH RED CROSS

National Headquarters, 9 Grosvenor Cresent, London SW1X 7EJ

Surrey HQ, Woodlands Rd, Slyfield Green, Guildford

GU1 1RL

Tel: 020 7235 5454

Tel: 01483 572396

www.redcross.org.uk

CARERS UK

20-25 Glasshouse Yard, London, EC1A 4JS

Helpline: Mon - Fri 10 - 12, 2 - 4pm

Tel: 020 7490 8818

Helpline: 0808 808 7777

CEREBRAL PALSY ( SCOPE) Tel: 0800 626216

Helpline: 9am-9pm Mon-Fri; 2pm-6pm Sat-Sun

Helpline:: 0808 800 3333

CHANGING FACES – facing disfigurement

1-2 Junction Mews, Paddington, London, W2 IPN

Tel: 020 7706 4232

www.changingfaces.co.uk

CHILD GROWTH FOUNDATION for children with growth problems: 2 Mayfield Avenue, Chiswick, London, W4 1PW

Tel: 020 8995 0257

CLAPA - Cleft Lip & Palate Association

235-237 Finchley Road, London, NW3 6LS

SW London & Surrey CLAPA – 9 Easby Cres. Morden SM4 6SB

Tel: 020 7431 0033

www.clapa.com

CLIMB (formerly Research Trust for Metabolic Diseases in Children)

176 Nantwich Road, Crewe, CW2 6BG

Tel: 0970 770 0326

www.climb.org

COELIAC SOCIETY OF THE UK

P.O. Box 220, High Wycombe, Bucks, HP11 2HY

Tel: 01494 437278

www.coeliac.co.uk

COLITIS, CROHNS DISEASE and COLOSTOMY

Crohn's in Childhood Research Association

Parkgate House 35b West Barnes Lane, Motspur Park, KT3 6NB

National Association for Colitis and Crohn's Disease

4 Beaumont House, Sutton Rd, St Albans, AL1 5HN

National Advisory Service for Parents of Children with a Stoma

Tel: 020 8949 6209

www.circa.org

Tel: 01727 844296

www.nacc.org.uk

Tel: 01577 830579

COMMUNICATION & THERAPY THROUGH MUSIC

Cotswold House, Sutton Hospital, Surrey, SM2 5NF

Queen Mary’s, Orchard Hill, Carshalton – group for disabled children

Tel: 020 8296 4298

Tel: 020 8770 8384

COMPANION CYCLING

Tel: 020 8979 1995

Voicemail: 0961 344545

COMPASSIONATE FRIENDS – see bereavement

Tel: 01179 539639

CONTACT-A-FAMILY (advice, information and linking)

209-211 City Road, London, EC1V 1JN

Tel: 0808 808 3555

www.cafamily.org.uk

CORNELIA DE LANGE SYNDROME FOUNDATION UK

(CdLS UK)

106 Lodge Lane, Grays, RM16 2UL

Tel: 01375 376439

www.cdls.org.uk

COUNCIL FOR DISABLED CHILDREN Tel: 0171 843 6000

8 Wakely Street, London, ECIV 7QE

Tel: 020 7843 6000

www.ncb.org.uk/cdc.htm

CRYSIS - 24hr helpline for mothers with crying babies and under 5’s with behavioural problems.

Tel: 020 7404 5011

CYSTIC FIBROSIS TRUST

11 London Road, Bromley, Kent, BR1 1BY

Tel: 020 8464 7211

www.cftrust.org.uk

DEAF/BLIND & RUBELLA HANDICAPPED CHILDREN

see SENSE

Tel: 020 7272 7774

DEAF CHILDREN'S SOCIETY - National

15 Dufferin Street, London, ECIY 8UR

Tel: 020 7490 8656

Helpline: 0808 800 8880

www.ndcs.org.uk

DIABETES UK

10 Parkway Lane, London, NW1 7AA

Tel: 020 7424 1000

Careline: 020 7424 1030

www.diabetes.org.uk

DISABILITY INFORMATION SERVICES IN SURREY

DAIRS – Disability Advice and Information for Runnymede & Spelthorne

DAISE – Disability Advice Information Service for Elmbridge

DATA – Disability Advice Tandridge Area

DICE – Disability Information Centre Epsom

DisCASS – Disabled Citizens Advice & Support Service

WIDE – Woking Information for Disability Enquiries

Tel: 01306 875156

www.diss.org.uk

Tel: 01932 566622

Disability Equality in Education (DEE)

Unit GL Leroy House, 436 Essex Road, London, N1 3QP

Disability Information in Surrey (DISS)

Disability Sports Directory – Surrey Sports Development Unit

Bishop Reindorp School, Guildford, GU1 1JY

Disabled Living Foundation, Equipment Helpline

Disaway Trust – holidays for the disabled

DISS, Disability Information Service, Surrey

John Grooms working with disabled people

Limbless Association, Rehabilitation Centre, Roehampton Lane, SW15 5PR

Queen Elizabeth Foundation for Disabled People

RADAR - Royal Society for Disability and Rehabilitation

REACH - for children with hand or arm deficiency

Rising Dawn – advice on benefits

SPRED - Surrey Sports and Recreation for Disabled

STEPS - for those with lower limb abnormalities

The Lifetrain Trust (formerly PHAB)

www.actionforleisure.org.uk

Tel: 01403 210406

www.actionresearch-org.uk

Tel: 01883 744255

www.dialuk.org.uk

Tel: 020 7359 2855

www.diseed.org.uk

Tel: 01306 875156

Tel: 01483 532614

www.surreycc.gov.uk

Tel: 08451 309177

www.dlf.org.uk

Tel: 020 8390 2576

www.disaway.co.uk

Tel: 01306 875156

www.diss.org.uk

Tel: 020 7452 2000

www.johngrooms.org.uk

Tel: 020 8788 1777

www.limbless-associaton

Tel: 01306 875156

www.qefd.org

Tel: 020 7250 3222

www.radar.org.uk

Tel: 08451 306225

www.reach.org.uk

Tel: 01744 451215

Tel: 01276 857113

Tel: 0871 717 0044

www.steps-charity.org.uk

Tel: 01306 730929

Disability Times Newspaper

84 Claverton Street, London, SW1V 3AX

Tel: 020 8566 1204 (subs)

Tel: 020 8566 1202 (editorial)

Disability Alliance

Universal House, 88-94 Wentworth Street, London, El 7SA

Tel: 020 7247 8763 (10-4pm)

www.disabilityalliance.org

Disability Law Service

39-45 Cavell Street, London, E1 2BP

Tel: 020 7791 9800

www.abilityonline.net

Disabled Living Allowance Unit

Warbreck House, Warbreck Hill, Blackpool, FY2 OYE

Tel: 08457 123456

Disabled Living Foundation

380-384 Harrow Road, London, W9 2HU

Tel: 020 7289 6111

www.dlf.org.uk

DOWN'S SYNDROME ASSOCIATION

155 Mitcham Road, London, SW17 9PG

Downs Heart Group

Promoting Mainstream Education for Down's Children

Tel: 020 8682 4001

www.downs-syndrome.org.uk

Tel: 01525 220379

Tel: 01273 385228

DYSLEXIA - The British Dyslexia Association,

98 London Road, Reading, Berkshire, RG1 5AU

Tel: 0118 966 8271

www.dyslexia.org.uk

ECZEMA - National Eczema Society,

Hill House, Highgate Hill, London, N19 5NA

Tel: 020 7281 3553

Helpline: 0870 241 3604

www.eczema.org

EMPLOYMENT OPPORTUNITIES for people with a disability

123 Minories, London, EC3N 1NT

Tel: 020 7481 2727

www.opportunities.org.uk

ENURESIS RESOURCE & INFORMATION CENTRE (ERIC)

Advice for parents on incontinence

34 Old School House, Britannia Road Kingswood, BS15 8DB 34 Old School House, BritanniaRoad Kingswood, Bristol BS15 2DB

Tel: 01179 603060

www.eric.org.uk

EPILEPSY

Epilepsy Action - New Anstey House, Gateway Drive, Yeadon, Leeds, LS19 7XY

National Society for Epilepsy – Chesham Lane, Chalfont St Peters, Gerrards Cross, SL9 ORJ

Tel: 0808 800 5050

www.epilepsy.org.uk

Tel: 01494 601300

Helpline: 01494 601 400

www.epilepsynse.org.uk

EYES and EYESIGHT

Action for Blind People - support and advice

LOOK - for families with visually impaired children

Queen Alexandra College, 49 Court Oak Road, B17 9TG

Partially Sighted Society - information and equipment

The Sight Centre,9 Plato Place, 72/74 Dionis Road, SW6 4TU

Tel: 020 7732 8771

www.asbp.org

Tel: 0121 426 5038

www.look-uk.org

Tel: 020 7371 0289

FACIAL DISFIGUREMENT

Also see CHANGING FACES and LET'S FACE IT

UK Centre for Disfigurement

Tel: 01337 870281

www.dgc.org.uk

FAMILIES ANONYMOUS – Drug support

Tel: 020 7498 4680

FAMILY FUND TRUST

PO Box 50, York, Y01 2ZX

Tel: 01904 621115

www.familyfundtrust.org.uk

FRAGILE X SOCIETY

53 Winchelsea Lane, Hastings, East Sussex, TN35 4LG

Tel: 01424 813147

www.fragilex.org.uk

FRIEDRICHS ATAXIA GROUP

Sue Grice, Co-ordinator, Copse Edge, Thursley Road, Elstead, Godalming, Surrey, GU8 6DJ

ATAXIA

10 Winchester House, Kennington Park, Cranmer Rd, SW9 6EJ

Tel: 01252 702864

Tel: 020 7820 3900

www.ataxia.org.uk

GATEWAY CLUBS (linked to MENCAP)

4 Swan Courtyard, Coventry Road, Birmingham, B26 1BU

for Surrey

Tel: 0121 707 7877

Tel: 01622 674222

GROWTH CONDITIONS

See Child Growth Foundation

Restricted Growth Association

PO Box 4744, Dorchester, DT2 9FA

Tel: 020 8995 0257

Tel: 01308 898445

www.rgaonlline.org.uk

GUILDFORD TOURIST INFORMATION CENTRE

Tel: 01483 444333

GUILLAINE BARRE SYNDROME SUPPORT GROUP

C/o Lincolnshire CC, Eastgate, Sleaford, NG34 7EB

Tel: 01529 304615

Helpline: 0800 374803

www.gbs.org.uk HelplineTel: 0800 374803

HAEMOPHILIA SOCIETY

Tel: 020 7380 6000

HEAD and HEAD INJURY

British Institute for Brain Injured Children -

Knowle Hall, Bridgewater, Somerset

Child Brain Injury Trust

Radcliffe Infirmary, Woodstock Road, Oxford, OX2 6HE

Tel: 01278 684060

www.bibic.org.uk

Tel: 01865 552467

Hemi-Help - for Hemiplegia

HEADWAY - National Head Injuries Association Ltd

4 King Edward Court, King Edward Street, Nottingham, NGI lEW

Headway House, North Road, Guildford, GU2 9PU

Helpline: 020 8762 3179

Tel: 01159 240800

www.headway.org.uk

Tel: 01483 455225

HEARING

British Deaf Association

Friends of the Young Deaf

120a Abbey Street, Nuneaton, CV11 5BX

RAD –Royal Association for Deaf People-Surrey

316-320 High Street, Dorking, RH4 1QX

Tel: 0870 770 3300

Textphone: 0800 6522 965

www.britishdeafassociation.org.uk

Tel: 02476 641017

www.fyd.org.uk

Tel & Fax: 01306 991958

www.royaldeaf.org.uk

HEARTLINE ASSOCIATION

Tel: 01276 707636

H.M.E. CONTACT GROUP - for information and advice on Hemimegalencephaly

David & Dagmar Kerr, 3 Linn Drive, Netherlee, Glasgow G44 3PT

Tel: 0141 633 2617

HUNTINGTON'S DISEASE ASSOCIATION

108 Battersea High Street, London SW11 3HP

Tel: 020 7223 7000

www.had.org.uk

HYPERACTIVE CHILDREN’S SUPPORT GROUP

Tel: 01234 551313

www.hacsg.org.uk

HOLIDAYS FOR SPECIAL NEEDS – see Sect 4 Factsheet 2

RADAR - travel and holidays for disabled people

Royal National Institute for the Blind Holiday Service

Voluntary Association for Surrey Disabled

Tel: 020 7250 3222

www.radar.org.uk

Tel: 020 8388 1266

www.rnib.org.uk

Tel: 01372 377430

HOMESTART – see Section 3 Factsheet 4

www.homestart.org.uk

IN TOUCH – see Birth Defects Foundation

Tel: 08700 707020

INVALID CHILDRENS' AID NATIONWIDE (ICAN)

Dyer’s Buildings, Holborn, EC1N 2QP

Tel: 0870 010 4066

www.ican.org.uk

IRIS FUND for PREVENTION of BLINDNESS

York House, 199 Westminster Bridge Road, London, SE1 7UT

Tel: 020 7928 7743

www.irisfund.org.uk

KINGSTON TOURIST INFORMATION CENTRE

Tel: 020 8547 5592

LADY HOARE TRUST FOR PHYSICALLY DISABLED CHILDREN – 1st Floor, 89 Albert Embankment, SE1 7TP

Tel: 020 7820 9989

www.ladyhoaretrust.org.uk

LET'S FACE IT – Support Network

14 Fallowfield, Yateley, Camberley, GUI7 7LW

Tel: 01252 879630

www.letsfaceit.force9.co.uk

LEUKAEMIA CARE SOCIETY Tel: (01392) 464848

2 Shrubbery Ave, Worcester, WR1 1QH Tel:01905 330003

Careline: 0800 169 6680

www.leukaemiacare.org.uk

SECTION 7 - FACTSHEET 5

USEFUL ADDRESSES

LEUKAEMIA RESEARCH FUND

43 Great Ormond Street, London, WC1N 3JJ

Tel: 020 7405 0101

www.lrf.org.uk

LONDON TOURIST INFORMATION

Tel: 09068 663344

MENCAP – Understanding Learning Disability, Children & Adults

123 Golden Lane, London, EC1Y ORT

Helpline: 0808 808 1111

www.mencap.org.uk/helpline

MENINGITIS RESEARCH FOUNDATION

Meningitis Research Foundation - Surrey support group

Tel: 080 8800 3344 (24hr)

Tel: 01737 553857

www.meningitis.org.uk

METABOLIC DISEASES IN CHILDREN - see CLIMB

Tel: 0870 770 0326

MICROCEPHALY SUPPORT GROUP - Jackie Smith

C/o Contact a Family, 209-211 City Road, EC1V 1JN

Tel: 01604 603743

MUSCULAR DYSTROPHY CAMPAIGN

7-11 Prescott Place, Clapham, London SW4 6BS

FSH MUSCULAR DYSTROPHY SUPPORT GROUP

Tel: 020 7720 8055

www.muscular-dystrophy.org

Tel: 020 8950 7500

www.fsh-group.org

MUSIC

The Orpheus Centre (see S5 F4) residential arts facility for disabled people - North Park Lane, Godstone, RH9 8ND

Tel: 01883 744664

www.orpheus.org.uk

MULTIPLE SCLEROSIS SOCIETY

Helpline: 0808 800 8000

www.mssociety.org.uk

MOBILITY

MOBILITY INFORMATION SERVICE

Unit B1, Greenwood Court, Cartmell Drive, Shrewsbury, SY1 3TB

BANSTEAD MOBILITY CENTRE

Damson Way, Fountain Drive, Carshalton, Surrey, SM5 4NR

MOTABILITY

Goodman House, Station Approach, Harlow, CM20 2ET

Tel: 01743 463072

www.mis.org.uk

Tel: 020 8770 1151

Tel: 01279 635666

www.motability.co.uk

NATIONAL ASTHMA CAMPAIGN

Providence House, Providence Place, London, NI ONT

Tel: 0845 701 0203

www.asthma.org.uk

NATIONAL AUTISTIC SOCIETY - in support of those with autism or learning disability

Surrey group – Sarah Truman

Tel: 0870 600 8585

www.nas.org.uk

Tel: 01483 822630

www.mugsy.org

NATIONAL BLIND CHILDREN’S SOCIETY

NBCS House, Market Square, Highbridge, TA9 3BW

Tel: 01278 764764

www.nbcs.org.uk

NATIONAL CHILDBIRTH TRUST

Alexandra House, Oldham Terrace, London, W3 6NH

Tel: 08704 448707

www.nct.org.uk

NATIONAL MENINGITIS TRUST

Fern House, Bath Road, Stroud, GL5 3TJ

Tel: 0845 600 800

NATIONAL SOCIETY FOR THE PROTECTION OF CHILDREN

42 Curtain Road, London, EC2A 3NH

Child Protection Helpline

Tel: 020 7825 2500

www.nspcc.org.uk

Tel: 0808 800 5000

NEUROBLASTOMA SOCIETY (Childhood Cancer)

18 Harlesdon Road, St Albans, AL1 4LF

Tel: 01727 851818

NHS Direct

Tel: 0845 4647

NYSTAGMUS NETWORK

Tel: 01392 272573

www.nystagmusnet.org

OSTEOPATHIC CENTRE FOR CHILDREN

109, Harley Street, London, WIN 1DG

Tel: 020 7486 6160

PARENTLINE - Helpline for parents under stress

Jill Ward, 27 Kingston Avenue, Leatherhead, KT22 7HY

Tel: 0345 567800

PARENTS FOR INCLUSION

Unit 2, 70 South Lambeth Road, London, SW8 1RL

Tel: 020 7735 7872

www.parentsforinclusion.org.uk

NATIONAL SOCIETY FOR PHENYLKETONURIA UK Ltd

PO Box 26642, London, N14 4ZF

Tel: 0845 603 9136

www.web.ukonline.co.uk/nspku

POLIOMYELITIS

British Polio Fellowship, Eagle Office Centre, The Runway, Ruislip, HA4 6SE

Tel: 0800 0180 586

www.britishpolio.org

PRADER-WILLI SYNDROME ASSOCIATION (UK)

125a London Road, Derby, DE1 2QQ

Tel: 01332 360400

www.pwsa.co.uk

PREMATURE BABIES BLISS

68 South Lambeth Road, London, SW8 1RL

Tel: 0870 7700 337

Or: 0500 618140

www.bliss.org.uk

QUEEN ELIZABETH FOUNDATION – promoting equality for disabled people

Leatherhead Court, Leatherhead, KT22 0BN

Tel: 01372 841100

www.qefd.org

REACH - Association for children with hand / arm deficiency

PO Box 54, Helston, TR13 8WD

Tel: 08451 306225

www.reach.org.uk

RETINITIS PIGMENTOSA - BRITISH SOCIETY

PO Box 350, Buckingham, MK18 1GL

Tel: 01280 860363

RETT SYNDROME ASSOCIATION (UK)

113 Friern Barnet Road, London, Nll 3EU

Tel: 0870 770 3266

www.rettsyndrome.org.uk

REYE'S SYNDROME FOUNDATION of the UK

15 Nicholas Gardens, Pyrford, Woking, GU22 8SD

Tel: 01932 346843

www.reyesyndrome.co.uk

RIDING FOR THE DISABLED ASSOCIATION

Lavinia Norfolk House, Stoneleigh Park, Warwicks, CV8 2LY

Tel: 01203 696510

www.ridingforthedisabled.org.uk

ROYAL ASSOCIATION FOR DISABILITY & REHABILITATION (RADAR) - 12 City Forum, 250 City Road, London, EC1V 8AF

Tel: 020 7250 3222

www.radar.org.uk

SAMARITANS

Tel: 08457 90 90 90

S.A.N.D.S. - Stillbirth and Neonatal Death Society

28 Portland Place, London, W1N 3DE

Surrey Stillbirth & Neo-natal Death Society

Helpline: 020 7436 7940

www.uk-sands.org

Tel: 01737 769459

SCOPE (formerly SPASTIC SOCIETY)

6-10 Market Road, London, N7 9PW

Local Support – contact national helpline

Helpline: 0808 800 3333

www.scope.org.uk

SENSE (DEAF-BLIND AND RUBELLA ASSOCIATION)

11-13 Clifton Terrace, London, N4 3SR

South East

Tel: 020 7272 7774

www.sense.org

Tel: 020 8541 1147

SIBS – Support and information for brothers and sisters of mentally handicapped people

c/o MENCAP, 123 Golden Lane, London EC1Y ORT

Tel: 0808 808 1111

SICKLE CELL (ANAEMIA) SOCIETY

54 Station Road, London, NW10 4UA

Tel: 020 8961 7795

Tel: 020 8961 4006

www.sicklecellsociety.org

SKILL – National Bureau for Students with Disabilities

Tel: 0800 328 50 50

SHAFTESBURY SOCIETY

16-20 Kingston Road, South Wimbledon, SW19 1JZ

Tel: 020 8542 5550

SPINA BIFIDA & HYDROCEPHALUS ASSOCIATION (ASBAH)

42 Park Road, Peterborough, PE1 2UQ

Tel: 01733 555988

www.asbah.org

SPINAL MUSCULAR ATROPHY

Jennifer Trust for Spinal Muscular Atrophy

Elta House, Birmingham Road, Stratford upon Avon, CU37 0QA

Tel: 01789 267520

Helpline: 0800 975 3100

(families only)

www.stsma.org.uk

SPINAL INJURIES ASSOCIATION

Yeoman House, 76 St James's Lane, London, N10 3DF

Tel: 020 8444 2121

Helpline: 0800 980 0501

www.spinal.co.uk

STEPS - Support group for families of children with lower limb abnormalities

Lymm Court, 11 Eagle Brow, Lymm, WA13 OLP

Tel: 0871 717 0044

www.steps-charity.org.uk

STROKE ASSOCIATION

CHSA House, 123-127 Whitecross Street, London, EC1Y 8JJ

Tel: 020 7566 0300

www.stroke.org.uk

SURREY CHILDREN’S INFORMATION SERVICE

Tel: 08456 011777

SURREY ASSOCIATION FOR VISUAL IIMPAIRMENT

Rentwood, School Lane, Fetcham, KT22 9JX

Tel: 01372 377701

SURREY COUNTY COUNCIL – CONTACT CENTRE

Tel: 08456 009 009

SURREY DEAF SERVICES TEAM

Rentwood Resource Centre, School Lane, Fetcham, KT22 9JX

Tel: 01372 376558

Fax: 01372 360224

SURREY TRAUMA SUPPORT SERVICE

Tel: 01483 563317

SURREY VOLUNTARY SERVICES COUNCIL

Tel: 01483 566072

TAMBA - Twins & Multiple Births Association

2 The Willows, Gardener Road. Guildford, GU1 4PG

Tel: 0870 770 3305

www.tamba.org.uk

THALIDOMIDE SOCIETY

19 Central Avenue, Pinner, Middlesex, HA5 5BT

The Society has considerable experience in the field of foreshortened limbs.

Tel: 020 8868 5309

TOURETTE SYNDROME (UK) ASSOCIATION

Tel: 020 8855 7478

THE LIFETRAIN TRUST – integrating people with and without physical disabilities

Tel: 01306 730929

THE VALLEY TRUST – counselling service for Surrey schools & families

101 Walnut Tree Close, Guildford, GU1 4UG

Tel: 01483 454533

TRACHEAL CONDITIONS

Aid for Children with Tracheotomies

Tracheo Oesophogeal Fistula Support (TOFS)

St Georges Centre, 91 Victoria Rd, Netherfield, NG4 2NN

Tel: 01823 698398

Tel: 01159 613092

www.tofs.org.uk

TWINLINE - Helpline for parents

(7pm -11pm weekdays, 10am-11pm weekends)

Tel: 01732 868000

TUBEROUS SCLEROSIS ASSOCIATION

Little Barnsley Farm, Catshill, Bromsgrove, B61 0NQ

Tel: 01527 871898

www.tuberous-sclerosis.org

TURNER SYNDROME SOCIETY UK

1-8 Irving Court, Hardgate, Clydebank, G81 6BA

Tel: 01389 380 385

www.tss.org.uk

UNIQUE – The Rare Chromosone Disorder Support Group

PO Box 2189, Caterham, CR3 5GN

Tel & Fax: 01883 330766

www.rarechromo.org

Justice for Vaccine Damaged Children

Tel: 0117 955 7818

VICTIMS and SURVIVORS

Action for Victims of Medical Accidents (AVMA)

Breaking Free - for survivors of child sexual abuse

Roadpeace - for victims of traffic accidents

Trauma Aftercare Trust - for victims of disasters

Voice UK - for abused people with learning difficulties

Tel: 020 8686 8333

www.avma.co.uk

Tel: 020 8687 4134

Tel: 020 8964 1021

Tel: 01242 890306

Tel: 0870 013 3965

www.voiceuk.clara.net

WHITE LODGE CENTRE – for disabled children and adults

Holloway Hill, Chertsey, KT16 0AE

Short Term Care Unit

Family Link Scheme

Adult Centre

Play & Leisure Service

Tel: 01932 567131

Tel: 01932 568365

Tel: 01932 565767

Tel: 01932 567134

Tel: 01932 567131

WRITE AWAY, 1 Thorpe Close, LONDON, W10 5XL

Penfriends for children and adults with disabilities

Tel: 020 8964 4225

Fax: 020 8964 3532

Back To The Top Of The Page